- AMERICAN ACADEMY OF PEDIATRICS
Palliative Care for children: Position statement from The
American Academy of Pediatrics (AAP) - "ABSTRACT. This
statement presents an integrated model for providing palliative
care for children living with a life-threatening or terminal
condition. Advice on the development of a palliative care plan
and on working with parents and children is also provided.
Barriers to the provision of effective pediatric palliative care
and potential solutions are identified. The American Academy of
Pediatrics recommends the development and broad availability of
pediatric palliative care services based on child-specific
guidelines and standards. Such services will require widely
distributed and effective palliative care education of pediatric
health care professionals."
- CHILDREN'S HOSPICE INTERNATIONAL
Children's Hospice International (CHI) is a non-profit
organization which provides a network of support and care for
children with life-threatening conditions and their families. The
hospice approach for children is a team effort that provides
medical, psychological, social and spiritual expertise and
information in the United States and abroad.
CHI is committed to the concept of care called
"hospice." It recognizes the right and need for
children and their families to choose health care and support
whether in their own home, hospital, or hospice care facility.
- FERNSIDE CENTER FOR GRIEVING CHILDREN
A center for grieving children devoted to kids. Information,
- FREE TEENS
Free Teens is a nonprofit, reality based, abstince focused
sex-education program for teenagers used in 38 states around the
country. This is an effective abstinence program that helps to
prevent teen pregnancy and helps to prevent STD and AIDS deaths.
Research shows that sex-education programs that encourage proper
use of condoms do NOT achieve the goal of preventing pregnancy,
STDs and AIDS transmission. Only sexual abstinence until marriage
is a 100% sure way to prevent these problems. This program (and
others like it) helps teens improve their self-esteem, have
healthy interpersonal relationships, achieve their goals and
learn life skills they will take with them throughout their
lives. A valuable program working to benefit our society.
The Dougy Center, the first center in the US to provide peer
support groups for grieving children, offers excellent resources
for adults and children.
- MAKE-A-WISH FOUNDATION
For more than 20 years the Make-A-Wish Foundation has been
helping children with terminal or life-threatening illnesses
realize their dearest wishes. From trips to Hawaii or Disney
World to riding a horse or becoming a "police officer for a
day" if you know a child with a terminal illness, who has a
special dream or wish, try contacting the Make-A-Wish Foundation
- NATIONAL HOSPICE AND PALLIATIVE CARE ORGANIZATION
Compendium of Pediatric Palliative
A comprehensive reference on pediatric palliative care.
The National Hospice and Palliative Care Organization (formerly
National Hospice Organization) publishes numerous books, booklets
and brochures of interest to all hospice professionals and the
general public. The Compendium is published 2001 and is sure to
be on the desk of every pediatric hospice department head.
- PAIN EDUCATION FOR PATIENTS, FAMILIES AND
An excellent resource for information about treating pain such
as cancer pain, especially in children, this site is quite
helpful, and is still being updated.
- PRENATAL PARTNERS FOR LIFE
Support information & encouragement for carrying to term with an adverse prenatal diagnosis and support for raising your child with special needs after birth
- SAFE CROSSINGS
Nonprofit hospice program that assists children with terminal
illness or the death of a loved one. Offers resources for
children, parents, and professionals: short articles, activities,
exercises, suggestions for coping with difficult feelings on
holidays and other special occasions, links to related sites, and
separate bibliographies for each group.
- TAG: TEEN AGE GRIEF, INC.
TAG offers educational and support programs for grieving teens
and children. TAG conducts training programs for individuals and
professionals in educational, health care, social service, law
enforcement, and other settings. An informative site with many