For the public's information we will be presenting actual
cases in this section. There are many, many fine hospices in our
nation, with so many wonderful and dedicated staff. When quality
hospice care has been provided, the patient and family experience
a very intimate, intense and positive experience as their loved
one passes on. It is never an easy process, but with good hospice
care, there can be a death with dignity and peace. Comfort can be
maintained with good symptom management. We would like to praise
those hospices and staff that do serve in the spirit of what we
call the heart of hospice care.
However, there are other hospices which do not always provide
that quality of care. In these instances, families go through
devastating pain, anguish, and anxiety while the patient often
suffers needlessly. Cases will be presented here to learn how to
avoid these problems and will be disguised to protect the
identities of the actual patients and families. The cases fall
into the category of "hospice disasters" which actually
happened and are presented to show what hospice is NOT about, . .
. what hospice should not do. Good hospice care does not
involve violating standards of care, starving a conscious
patient, letting patients suffer in pain, or forcing them into a
hospice facility against their will so that the hospice can
collect room and board fees and keep their beds full. Good
hospice care does not provide assisted suicide to patients, and
it certainly does not administer medications which hasten death
in those who are not ready to die.
Some of the cases to be presented here are quite unusual and
occur extremely infrequently. Some of the cases occur quite
commonly. Any experienced hospice professsional knows that these
types of situations do occur. If a hospice professional tells you
that these cases are not realistic and could never happen, they
are simply not telling you the truth!
Submitting cases to be posted
If you know of a case that would be useful to share with the
public, please send us an e-mail describing the basic situation
that occurred. If we decide to post your case, we will require
that you send us a written, signed statement describing the
situation you witnessed, clearly summarized with all the basic
facts presented, including patient's diagnosis, exactly what
occurred, if any hospice professional tried to intervene on the
patient's behalf, if family members tried to intervene on the
patient's behalf, and what effect or consequences this case
has had on your life and the lives of those around you. We do NOT
want the names of the hospice where this occurred, nor do we need
all the names of others involved. The purpose of posting these
cases is for education, not for blame. We will not reveal the
name of the person submitting the case. Confidentiality will be
respected. Most people who contact us with cases like these are
deeply affected and can never forget the trauma of such events.
-
We will start with the following case about a man named
Stanley [not actual name] who was starved to death against his
will, all in the name of "hospice." Permission has been
obtained from the family of the patient described in this case.
Read about Stanley's story and
decide if this was good hospice care.
-
The second case involves a man who simply wanted to die at
home.
Read about what happened to him and decide if this was good
hospice care or not: Jose Alvarez'
story.
-
The third case involves a young woman of 29 years old with a
rare form of terminal cancer. Find out how the doctors treated
her and what the hospice did. You decide if good hospice care was
given in Denine Sharpe's story.
-
The fourth case involves an 83 year old woman with a slow
growing and relatively painless cancer who strangely started
suddenly going downhill once "hospice care" was
provided. She was started on two antidepressants and a
round-the-clock pain patch despite the fact that she had been
doing well on Tylenol only. This case is sent in from an M.D. who
writes that he is glad the Hospice Patients Alliance is there to
help others avoid the problems his mother-in-law encountered.
Read about how being overmedicated can affect one's longevity.
- Involuntary
Euthanasia Case 1
Lucid, Poor, Elderly Veteran Euthanized Against His Will
- Involuntary
Euthanasia Case 2
HMO Commits Medicare Fraud, Kills Patient and Falsifies Death
Certificate
- Involuntary
Euthanasia Case 3
Hospice Kills Family's Mother with Morphine Overdose
- Involuntary
Euthanasia Case 4
Hospice Kills Parkinson's Patient by Dehydration, Terminal
Sedation
and Morphine Overdose
By being informed about what could happen, and knowing what
really good hospice care should be, you can prevent such hospice
tragedies from occurring to your loved one! New cases will be
added over time. To learn about the standards of care in hospice
and what services hospices can provide, please look at our list
of topics on our main page. Each
area of hospice service is described.
Enter Here for
Involuntary Euthanasia News and Reports.
The four cases of involuntary euthanasia noted above are also
listed on this page.
If you have questions about hospice, we hope that you will
take the time to visit the hundreds of pages at our website, read
our Guide to Hospice
Care and visit our resources and links section (with hundreds of vital
resources listed).
Hospice Patients Alliance affirms that all human life is
inherently valuable and that the role of hospice nurses,
physicians and all other staff is to alleviate suffering and
provide comfort for the sick and dying without sanctioning or
assisting their suicide. A death with dignity allows for a
natural death in its own time, while doing everything possible to
assure relief from distressing symptoms. Hospice Patients
Alliance works hard to promote quality hospice care throughout
the USA. If you would like to support our mission, we hope you
wille consider supporting our mission through a donation.
Hospice Patients Alliance is a 501(c)(3) charitable nonprofit
corporation and your donations are deductible to the full extent
allowed by law.
Sign up for the Hospice-Issues Online Email Discussion Group
at Hospice Patients Alliance
http://lists.hospicepatients.org/mailman/listinfo/hospice-issues
Click on the Hospice Issues link above and then you can sign
up to join the discussion of issues in hospice and end of life
care, and you will begin to receive email messages from the
members of the discussion group. All you need to do is enter your
email address, along with your own password, and click the
"Subscribe" button.
|