Other Important Links
This section of links is divided up into the following areas:
Advocacy sites, AIDS, cancer, general health care, hospice,
internet resources, medical-health care ethics, mental health,
nursing, pain, and public policy/access to political and
government representatives .
-
Advocacy Sites
- ADVOCACYNET.COM
http://advocacy-net.com/medicare-medicaidmks.htm
Advocacynet.com has an extensive listing of sites with information about all aspects of Medicare and Medicaid. This site can help you quickly find what you need to know. (The Hospice medicare/medicaid benefit is already fully explained at our own website: Hospice Patients Alliance... see our home page at: www.hospicepatients.org]
- ALLIANCE DEFENSE FUND
www.alliancedefensefund.org
The Alliance Defense Fund is a legal alliance defending the right to hear and speak the Truth through strategy, training, funding, and litigation.
ADF was founded for a unique purpose: to aggressively defend religious liberty by empowering our allies, recognizing that together, we can accomplish far more than we can alone.
- ASSOCIATION OF AMERICAN PHYSICIANS AND
SURGEONS
www.aapsonline.org/
AAPS has been dedicated to the highest ethical standards of
the Oath of Hippocrates and to preserving the sanctity of the
patient-physician relationship and the practice of private
medicine. AAPS is an outspoken advocacy group working to promote
improvements in the health care system and on behalf of all
patients and physicians.
- ASSOCIATION OF PRO-LIFE PHYSICIANS
www.prolifephysicians.org
"One of the elements of the Hippocratic Oath was a vow not to kill the pre-born: “I will neither give a deadly drug to anybody if asked for it, nor will I make a suggestion to this effect. Similarly, I will not give to a woman an abortive remedy.” We are exclusive Hippocratic physicians in this critical sense: we will not kill innocent people." Find a pro-life physician here.
- CHRISTIAN MEDICAL AND DENTAL ASSOCIATION
www.cmds.org
The Christian Medical & Dental Associations (CMDA) serve
as a voice and ministry for Christian doctors. They provide
information about healthcare from the Christian perspective and
have produced a video revealing how physician assisted suicide
and euthanasia are not the "merciful" solution to end
of life care and terminal illnesses.
- COMPASSIONATE HEALTHCARE NETWORK
www.chninternational.com
CHN consists of both professional and lay people who CARE
about the crisis medicine and healthcare is experiencing, and
promote 'Aid in Living'. CHN opposes euthanasia by
actively defending the inherent value of all human life.
CHN's work is international, and comprises of a network of
people who provide speakers and workshops; research data
pertaining to euthanasia, assisted suicide, palliative care,
Advance Directives, (living wills and protective medical
documents) and videos, to professionals, students, Churches, the
government, lay organizations, and individuals..
- EUTHANASIA PREVENTION COALITION
http://epcc.ca/
The Euthanasia Prevention Coalition was established to prepare a well-informed, broadly based, network of groups and individuals who support measures that will create an effective social barrier to euthanasia and assisted suicide. Purpose: To preserve and enforce legal prohibitions and ethical guidelines prohibiting "mercy killing." To increase public awareness of hospice/palliative care. To promote improvement in the quality and availability of hospice/palliative care, and effective methods of controlling pain and suffering.
- FAMILIES USA ORGANIZATION'S RESOURCES PAGE FOR
HEALTH CARE ADVOCACY
Families USA
An excellent resource with information on Medicaid and many
aspects of health care advocacy in our country.
- FEMINISTS FOR LIFE
www.feministsfor life.org
"Pro-life feminists must work to address the root causes
that drive women and men to the desperate act of euthanasia,
assisted suicide and suicide by replacing suffering and isolation
with love and compassion." - Serrin M. Foster, Exec. Dir.,
Feminists for Life of America
Feminists For Life is a life affirming organization of men and
women who support justice and equality, believe in equal rights
regardless of gender, yet celebrate the differences especially
that of a woman's life-giving capacity. FLF ... defends
women's rights and believe that they do not come at the
expense of others, especially those of our own preborn
children... believe in a woman's right to control her body
and she deserves this right no matter where she lives; even if
she's still living inside her mother's womb ... FFL
proudly continues in the pro-life tradition of our feminist
foremothers, who recognized abortion as the ultimate act of
violence against women and children, and envisioned a better
world for all humankind...a world in which abortion would be
unthinkable. "When we consider that women are treated as
property, it is degrading to women that we should treat our
children as property to be disposed of as we see fit." -
Elizabeth Cady Stanton, Women's Rights Movement Organizer,
October 16, 1878
- HEALTH ADMINISTRATION RESPONSIBILITY PROJECT
http://harp.org
HARP is a resource for patients, doctors, and attorneys
seeking to establish the liability of Managed Health Care
Organizations and Nursing Facilities for the consequences of
their decisions. They are concerned that in the headlong rush to
"Efficient" Medical care, the organizations involved
are losing sight of the "Quality" of the care they
provide.
As more and more "Incentives" to cut back on medical
care are put in place by the new class of medical entrepreneurs,
the patient often suffers. We feel that Counter-incentives must
be applied, and they must be financial. The only such
Counter-incentives available under our system are lawsuits for
damages caused by excessive cost-cutting measures.
- HEALTH CARE INFORMATION RESOURCES
Consumer Advocates Links
www-hsl.mcmaster.ca/tomflem/advocates.html
This is a listing of health care consumer advocacy sites and
is posted by the Health Care Information Resources of the
McMaster University Health Sciences Library, Canada
- HEALTH CARE PROBLEMS ARCHIVE
www.healthcareproblems.org/
The Health Care Problems Archive is dedicated to gathering information for the same purpose the orthopedic surgeon gathers information: to make possible diagnosis and treatment of a problem. Unlike the doctor, however, The Health Care Problems Archive does not attempt diagnosis or prescription. That's left to the reader. The Health Care Problems Archive does the first part of the surgeon's job. It collects information and assembles it for study.
- HEALTH PRIVACY PROJECT
www.healthprivacy.org/
The Health Privacy Project is dedicated to raising public awareness of the importance of ensuring health privacy in order to improve health care access and quality, both on an individual and a community level. They are monitoring the HIPAA privacy regulations and enforcement of these laws as well.
- HUMAN LIFE ALLIANCE
www.humanlife.org
Human Life Alliance is a pro-life organization dedicated to protecting human life from the moment of conception until natural death. HLA seeks to educate all people on life issues by ... opposing euthanasia in all its forms, both active and passive, and fighting for the protection of all human life including the terminally ill, elderly, disabled and medically vulnerable. HLA has an excellent pamphlet available online entitled "Imposed Death."
- INTERNATIONAL TASK FORCE ON EUTHANASIA AND ASSISTED SUICIDE
www.internationaltaskforce.org
For detailed information on preventing euthanasia, assisted suicide, advance directives, assisted suicide proposals, "right-to-die" cases, euthanasia practices in the Netherlands, disability rights, pain control and much, much more. You can contact them at 740-282-3810 or e-mail them at: info@iaetf.org. Prof. Rita Marker, P.O.Box 760, Steubenville, OH 43952
- JUSTWHISPER.COM
www.justwhisper.com
If you're a healthcare professional caught in a situation
where Medicare or other fraud is going on, and you need someone
to talk to, to get legal resources in your area, Justwhisper.com
provides confidential help. Stefanie Fletcher, RN is an
experienced nurse who was forced by circumstances and her
conscience to become a whistleblower. She founded this website
after successfully working hard to stop millions of
dollars worth of fraud at the hospital where she worked. She was
one nurse, and she succeeded in stopping a big hospital
corporation from violating the laws and standards! If you know
about fraud, you can do the same.
-
NATIONAL ASSOCIATION TO STOP GUARDIAN ABUSE
www.stopguardianabuse.org
The National Association to Stop Guardian Abuse is an organization formed by victims and for victims of unlawful and abusive guardianships and conservatorships.
-
NATIONAL CENTER ON WOMEN & AGING
www.heller.brandeis.edu.national
The mission of the National Center on Women and Aging is to focus national attention on the special concerns of women as they age, to develop solutions and strategies for dealing with these concerns, and to reach out to women and organizations across the country, promoting the changes necessary to improve older women's lives.
Telephone: 800-929-1995 or 781-736-3866; Email: natwomctr@brandeis.edu
- NATIONAL COALITION FOR PATIENT RIGHTS
www.nationalcpr.org/index.html
This is a consumer advocacy group and non-profit organization
dedicated to the premise that patients have the right to privacy
when they consult a health-care professional. The interests of
employers, insurers, government agencies, police and others
should not be allowed to supersede that basic right. If your
rights to privacy have been violated, we suggest that you contact
this organization for more information about your rights and what
you can do to stop the betrayal of your privacy rights in hospice
care or any aspect of health care. You can make a difference!
- NATIONAL CENTER ON ELDER ABUSE
www.gwjapan.com/NCEA
NCEA provides elder abuse information to professionals and the
public; offers technical assistance and training to elder abuse
agencies and related professionals; conducts short-term elder
abuse research; and assists with elder abuse program and policy
development. NCEA's website contains many resources and
publications to help achieve these goalS. You can find many links
to report elder abuse and find more information about protecting
the elderly in our national community.
-
NOT DEAD YET
www.notdeadyet.org/
Not Dead Yet opposes a public policy that singles out individuals for legalized killing based on their health status. Such a policy violates the Americans With Disabilities Act, denies the disabled the equal protection of the law, and health professionals decide who is "eligible." In these days of cost cutting and managed care, Not Dead Yet doesn't trust the health care system, and neither should you. Moreover, assisted suicide proponents have a broader agenda that includes non-voluntary euthanasia. Not Dead Yet is working through legal action to protect the rights of the disabled. Telephone No. (708) 209-1500
-
PATIENT SAFETY
www.patient-safety.com/
This is an informative website that explains how patients may be blacklisted, how physicians protect each other, and nurses fail to report problems in health care settings, how malpractice is covered up and patients victimized. Blacklisting of patients does happen! Whistleblowers are blackballed and may never work in health care again!
- PEOPLE'S MEDICAL SOCIETY
www.peoplesmed.org
One of the largest patient advocacy organizations in the U.S.
which helps consumers make informed decisions about their
insurance coverage.
Telephone No. 410-997-9283
- PHARMACY COMPOUNDING FACTS
www.pharmacycompoundingfacts.org
Revealing problems with pharmaceutical products and how they are formulated. Sometimes pharmacists do not provide the proper medication, in its full strength as ordered, or in a form that is uncontaminated with other products. Get the truth now!
- PHYSICIANS FOR COMPASSIONATE CARE
EDUCATIONAL FOUNDATION
www.pccef.org
The PCCEF affirms an ethic based on the principle that all
human life is inherently valuable and that the physician's
roles are to heal illness, alleviate suffering, and provide
comfort for the sick and dying. PCCEF promotes compassionate care
for severely ill patients without sanctioning or assisting their
suicide.
- PHYSICIANS FOR LIFE
www.physiciansforlife.org/
PHYSICIANS FOR LIFE exists to draw attention to the issues of abortion, euthanasia, .... [and others].
- PHYSICIANS WHO CARE
www.pwc.org
PHYSICIANS WHO CARE believes the responsibility for medical
care belongs first and foremost to physicians and patients. We
affirm the right of the physician, as the provider of care, to
diagnose, prescribe, test and treat patients without undue
outside interference. We affirm the right of the patient, as the
person most affected by care, to choose his or her own physician
and help determine the type of treatment received. Telephone No.
800-800-5154
- SOCIETY FOR HEALTHCARE CONSUMER ADVOCACY
www.shca-aha.org
The mission of the Society for Healthcare Consumer Advocacy is
to lead the advancement of healthcare consumer advocacy by
supporting the role of professionals who represent and advocate
for consumers across the healthcare continuum. SHCA achieves its
mission by: Providing its members with education, information,
and networking opportunities. Serving as a resource for
consumers, payers, the community, and other healthcare
professions on issues such as: patient education, patients'
rights, ethics, patient satisfaction/measurement, complaint
management, customer service. This organization is associated
with the American Hospital Association which advocates for the
interests of hospitals nationwide.
AIDS Related Sites
- AEGIS
www.aegis.org
Largest AIDS site of all. Contains many postings suitable only
for medically educated, but also contains hundreds of thousands
of postings for the layperson. The search engine is easy to use,
which is good because the site is so large. The focus is local,
national, and international.
- AIDS.ORG
www.aids.org
One of the main AIDS organizations serving
those dealing with AIDS related issues.
- AIDS SERVICE ORGANIZATION - IMMUNET
www.immunet.org
Valuable resource for AIDS patients and family/caregivers.
- AIDS TREATMENT NEWS - INTERNET DIRECTORY
www.aidsnews.org
You can access much information about AIDS Treatment at this
site,
along with links to many other AIDS-related sites.
Tel. 1-800-TREAT-12 or Tel. 415-255-0588
- HIV - INFOWEB
www.infoweb.org
An on-line library containing HIV and AIDS-related
information. The HIV Infoweb is maintained online by volunteer
efforts and has a large amount of information and links to other
AIDS & HIV related sites.
- THE BODY: AIDS/HIV Info Resource
www.thebody.com/index.shtml
An AIDS and HIV information resource. The Body's mission
is to: 1.Use the Web to lower barriers between patients and
clinicians 2.Demystify HIV/AIDS and its treatment; 3.Improve
patients' quality of life; 4.Foster community through human
connection.
Anti-Euthanasia Sites
- Citizens United Resisting Euthanasia
http://cureltd.home.netcom.com/sop.htm
Founded in 1981 Citizens United Resisting Euthanasia (CURE,
Ltd.) is a nationwide network of concerned citizens of diverse
professional, political, and religious backgrounds bound together
in a common cause: uncompromising opposition to euthanasia. To
this end, we practice compassion, unity, research, and education.
CURE, 812 Stephen St., Berkeley Springs, WV 25411; 304-258-LIFE
(voice); 304-258-5420 (fax); CUREltd@ix.netcom.com .
- INTERNATIONAL ANTI-EUTHANASIA TASK FORCE
www.iaetf.org
For detailed information on euthanasia, assisted suicide,
advance directives, assisted suicide proposals,
"right-to-die" cases, euthanasia practices in the
Netherlands, disability rights, pain control and much, much more.
You can contact them at 740-282-3810 or e-mail them at: info@iaetf.org. Prof. Rita Marker,
P.O.Box 760, Steubenville, OH 43952
- PHYSICIANS FOR COMPASSIONATE CARE
EDUCATIONAL FOUNDATION
www.pccef.org
The PCCEF affirms an ethic based on the principle that all
human life is inherently valuable and that the physician's
roles are to heal illness, alleviate suffering, and provide
comfort for the sick and dying. PCCEF promotes compassionate care
for severely ill patients without sanctioning or assisting their
suicide.
Cancer related sites
Also see Pain sites below.
- AMERICAN CANCER SOCIETY
www.cancer.org
A very helpful site. This is an organization that provides
much support to those going through the trials of dealing with
cancer. Support groups are available through the American Cancer
Society.
- AMERICAN COLLEGE OF PHYSICIANS
HOME CARE GUIDE FOR ADVANCED CANCER
www.acponline.org/public/homecare
- AMERICAN SOCIETY OF CLINICAL ONCOLOGY
www.asco.org
Information and articles from the experts about cancer related
research, treatment, and care during the last phases of life.
This valuable site offers much information to the patient with
cancer. Also provides links to other organizations with
information relating to cancer and patient care.
- CANCER CARE
www.cancercare.org
Cancer Care is dedicated to providing emotional support,
information, and practical help to people with cancer and their
loved ones. As the oldest and largest national nonprofit agency
devoted to offering professional services, Cancer Care has helped
over a million people nationwide through its toll-free Counseling
Line and teleconference programs, its office-based services, and
via the Internet; also publishes "Helping Hand," a
useful resource guide for cancer patients and others. Includes
resource information for caregivers.
- CANCERFACTS.COM
www.cancerfacts.com
A portal for cancer information and support communities that
offers a cancer-profiler which is helpful for the newly
diagnosed, explaining different stages of cancer, treatment
options and potential side-effects. Users can access official
medical information, patient chat groups, information on clinical
trials, and news and links for support groups.
- CANCER INFORMATION SERVICES (NATIONAL CANCER
INSTITUTE)
www.cancer.gov
For specific information on various forms of cancer, its
symptoms, treatment & prognosis; also information on treating
pain related to cancer; provides referrals to hospice, home care
and support groups.
- CANCER ON LINE.ORG
www.canceronline.org
Excellent resources for patients and their loved one related
to cancer and pain management.
- CANCERPAGE.COM
www.cancerpage.com
For the latest information on all types of cancer. Details
about many forms of cancer, message boards, chat rooms and more.
- CANCERTRACK.COM
www.cancertrack.com
For information on all types of cancer. Details about many
forms of cancer, treatments, support groups, printed and online
resources.
-
DANA-FARBER CANCER INSTITUTE
www.dana-farber.org/can/resources/
Dana-Farber Cancer Institute is a principal teaching affiliate of the Harvard Medical School and is among the leading cancer research and care centers in the United States. It is a founding member of the Dana-Farber/Harvard Cancer Center (DF/HCC), designated a comprehensive cancer center by the National Cancer Institute; with information on all types of cancer, treatments, support groups, printed and online resources.
- FAMILIES COPING WITH CANCER WEB RING
http://www.geocities.com/Athens/Styx/8399/fcwcring.html
The Hospice Patients Alliance website is a member (or ring) of
the Families Coping With Cancer Web Ring. This is one of the main
cancer web rings which provides a listing of sites all related to
coping with cancer. In a web ring, each member website forms one
"ring" of the webring chain, and you can
"surf" from site to site by clicking on the
"Next" link at the webring logo (like we have on our
main page)
- FIND CANCER EXPERTS.COM
www.findcancerexperts.com/
Errors occur in the diagnosis of cancer. These mistakes can
lead to incorrect treatment with serious medical complications.
FindCancerExperts refers patients for EXPERT SECOND OPINIONS to
NATIONALLY RECOGNIZED DOCTORS -- PATHOLOGISTS -- specializing in
the tissue diagnosis of all cancer types. FindCancerExperts is a
RAPID, CONFIDENTIAL & FREE SERVICE offering immediate access
to the largest established national network of prominent
pathology experts.
- ONCOLINK
oncolink.upenn.edu
The University of Pennsylvania Cancer Center's website
with vast information on cancer, symptom management,
what's new, search topics and more
Caregiver Support Sites
- CAREGIVER.COM
www.caregiver.com
This site contains back issues of Today's Caregiver
Magazine, information on the "Sharing Wisdom Caregivers
Conferences" and a discussion forum.
- CAREGIVING.COM
www.caregiving.com
This site offers resources and support for family caregivers.
- CARETHERE.COM
www.carethere.com
This site offers resources to help caregivers assess their
needs; find medical, financial and legal information; connect
with family and other caregivers; and locate local services and
products.
- CAREGIVER SURVIVAL RESOURCES
www.caregiver911.com
This website has all types of resources and a wealth of
information, both general and specific. There are links to other
health-related web sites, information on books, and
disease-specific resources.
- NATIONAL FAMILY CAREGIVERS ASSOCIATION
www.nfcacares.org/
NFCA is a grass roots organization created to educate,
support, empower and speak up for the millions of Americans who
care for chronically ill, aged or disabled loved ones. NFCA
espouses a philosophy of self-advocacy and self-care that is
predicated on the belief that caregivers who choose to take
charge of their lives, and see caregiving as but one of its
facets, are in a position to be happier and healthier
individuals. Through its services in the areas of education and
information, support and validation, public awareness and
advocacy, NFCA strives to minimize the disparity between a
caregiver's quality of life and that of mainstream Americans.
- NATIONAL ALLIANCE FOR CAREGIVING
www.caregiving.org
This site is a joint venture of many organizations designed to
support family and professional caregivers. Includes the Family
Caregiver Resource Connection, which reviews and rates hundreds
of books, videos, websites, magazines, fact sheets and other
resources addressing the range of issues and questions faced by
family caregivers.
- STRENGTH FOR CARING
www.strengthforcaring.com/
a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.
- WEBOFCARE.COM
http://www.webofcare.com/
Web of Care is a virtual community for home caregivers. They
support caregivers coping with a wide variety of conditions
associated with aging, several childhood disabilities, AIDS, and
many other chronic conditions that require support and care. Web
of Care features hundreds of reliable, up-to-date articles
reviewed by doctors, nurses and therapists.
There are also hundreds of animated demonstrations on daily
caregiving skills like feeding and diapering. The free "Ask
an Expert" service provides direct e-mail answers to
members' medical questions. Chat rooms, bulletin boards, free
e-mail and free web pages facilitate interaction between our
members. The Web of Care CareShop is a convenient online store
stocked with thousands of home care supplies ranging from
incontinence and wound care products to mobility aids and special
bedding.
General Health Care sites
- ACP-ASIM ONLINE - FIND IT
SEARCH MEDICAL JOURNALS
www.acponline.org/home/findit.htm
The American College of Physicians-American Society of
Internal Medicine (ACP-ASIM) is the nation's largest medical
specialty society. Its mission is to enhance the quality and
effectiveness of health care by fostering excellence and
professionalism in the practice of medicine.
- ADMINISTRATORS IN MEDICINE
www.docboard.org
If you want to check out a physician's background and
record, this is the place to get that hard-to-find information.
You can check the background of physicians in many States.
- AGENCY FOR HEALTHCARE RESEARCH AND QUALITY
(U.S. government site)
http://www.ahrq.gov/
An extremely useful site for accessing health care
information. Especially relevant to hospice is their
"Clinical Practice Guideline Number 9: Management of Cancer
Pain" which sets out the nationally accepted standards for
managing cancer pain which are followed by expert pain management
specialists. The Agency for Healthcare Research and Quality Web
site provides practical healthcare information, research
findings, and data to help consumers, health providers, health
insurers, researchers, and policymakers make informed decisions
about healthcare issues.
- AMERICAN ASSOCIATION OF PHYSICIANS AND SURGEONS
http://www.aapsonline.org
The American Association of Physicians and Surgeons works to promote excellence in health care and to reform the system so that physicians are allowed to practice in the best interests of the patient. AAPS affirms the original Hippocratic Oath and ethics which value the lives of the patients they serve. A wealth of information is available at their website. You can also contact them by phone at 1-800-635-1196
- CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC)
www.cdc.gov
U.S. Government site providing most up-to-date information on
diseases and prevention with links to other sites...health topics
A-Z.
- DOCTORLINE
www.doctorline.com
To find a doctor, an organization, or information on any
disease, condition or medications, check this one out.
-
FRIENDS' HEALTH CONNECTION
www.friendshealthconnection.org/
Friends' Health Connection is a nonprofit support network that connects people with similar health problems for the purpose of mutual support. It helps individuals cope with illness through the power of friendship and provides two support networks: a Patient Network which connects individuals with health problems and a Caregiver Network which connects family members, friends and caregivers of people with health problems.
- HARDIN MD - HARDIN META DIRECTORY OF INTERNET HEALTH
SOURCES
www.lib.uiowa.edu/hardin/md/index.html
A very large directory of health, medical and other healthcare
related sites on the web
- HEALTHFINDER
www.healthfinder.gov
A gateway consumer health information web site from the United
States government. Healthfinder® is a free gateway to
reliable consumer health and human services information developed
by the U.S. Department of Health and Human Services.
Healthfinder® can lead you to selected online publications,
clearinghouses, databases, web sites, and support and self-help
groups, as well as the government agencies and not-for-profit
organizations that produce reliable information for the public.
- HEALTHLINKS.COM
www.healthlinks.com
The Health Links Directory is divided into 31 major categories
and 168 sub-categories with over 400 specific healthcare
subjects. Listings can be accessed by going to the directory and
selecting a specific category - subcategory or by using the
search box at the top of the page. Healthlinks.com has created
several forums/bulletin boards including: Alternative Medicine,
Diseases, Men's Health, Fitness, Mental Health, Nursing,
Woman's Health, Dentistry, Nutrition and Healthcare
Technology. They also have newsletters and mailing lists for
different topics related to health. A wonderful resource.
- INTERNET HEALTH DIRECTORY
www.internet-health-directory.com/index.html
An extensive listing of health care resources.
- MAYO CLINIC HEALTH OASIS
www.mayohealth.org
Resources, Ask Mayo, Cancer Center, Diet & Nutrition,
Heart Center, Pregnancy & Children, Medicine Center,
Women's Health, etc.
- MDCHOICE.COM
http://www.mdchoice.com/pt/index.asp
MDChoice.com calls itself "the ultimate medical
information finder." This is a medical information portal
with the capability of searching medical sites, journals and
articles in an easily understood "user friendly" way.
They have lists of diseases, medications, health news and you can
search MEDLINE, CANCERlit, AIDSline and other medical databases.
They have a second site for health care professionals located at:
www.mdchoice.com/index.asp.
- MEDCAST.COM
www.medcast.com
Medcast.com is a physician resource for medical information
dealing with many medical specialties and areas of medical
research.
- MEDICAL TRIBUNE.COM
www.medicaltribune.com
Medical Tribune provides one of the most interesting magazines
for on-line medical information covering the full range of health
care and medical issues. A great resource for patients, families,
physicians and other health care professionals, with links to
other resources related to many different disease processes and
health care support. Check it out!
- MEDICINENET.COM
www.medicinenet.com
Medicine Net provides easily understood explanations of
hundreds of diseases, conditions, procedures and tests, first
aid, list of poison control centers, medications and their side
effects, and a dictionary of thousands of medical terms. All
content written by expert Board Certified medical doctors.
- MEDICINELIST.COM
www.medicine-list.com
Medicine-list.com is an internet directory which provides an extensive listing of online resources dealing with all aspects of health care, including hospice.
- MEDSCAPE.COM
www.medscape.com
Medscape.com provides one of the largest collections of
full-text clinical medical articles and is a free searchable
database for all types of medical information. This site is
accessed by physicians for their own ongoing research and
education. If you need information on a particular disease,
condition or medical topic, you will find much help at this site.
Medscape will be offering "Medscape Consumer" as
another service. Medscape provides free access to MEDLINE,
AIDSLINE and TOXLINE, and also provides daily medical news.
- NATIONAL INSTITUTE OF HEALTH
www.nih.gov/
Vast amounts of information can be found here on many
illnesses, medical treatment and resources.
- NATIONAL LIBRARY OF MEDICINE
www.nlm.nih.gov
Excellent for learning about research on diseases, treatment
and medical outlook. You can access MEDLINE from here and read
scientific reports about all diseases and conditions in numerous
medical journals from around the world.
- NATIONAL WOMEN'S HEALTH RESOURCE CENTER
http://www.healthywomen.org
Healthwomen.org is the one-stop shop for women's health
information on the web. This site includes "comprehensive
information on women's health topics that will help you make
informed health decisions."
-
"Since the late 1980s, the National Women’s Health
Resource Center, Inc. (NWHRC) has helped millions of women
educate themselves about the health topics that concern them the
most. The non-profit organization, dedicated to helping women
make informed decisions about their health, encourages women to
embrace healthy lifestyles to promote wellness and prevent
disease."
-
"As the national clearinghouse for women’s health
information, providing access to health information and resources
is [the] primary goal. The information ... provided is
comprehensive, objective, and supported by an advisory council
comprised of the nation’s leading medical and health
experts."
There is an "A to Z" topic index to search for
different topics of interest, frequently asked questions and
consumer tips on fitness, nutrition and disease prevention, as
well as healthcare issues ranging from teen health to pregnancy
to post-menopausal concerns."
- NEW ENGLAND JOURNAL OF MEDICINE ON-LINE
www.nejm.org
Reporting the results of important medical research worldwide
- NIH: HEALTH INFORMATION
www.nih.gov/health
A valuable resource with vast amounts of information.
- PHARMACY LIBRARY
www.cpb.uokhsc.edu/pharmacy/pharmint.html
Links to many pharmacy-related websites, organizations,
colleges, internet resources
- REUTERS HEALTH INFORMATION SERVICES
www.reutershealth.com
Health information from Reuters, medical news, search medical
news archives, search drug database and MEDLINE
- WEBMD.COM
www.webmd.com
WebMD is a leading consumer-focused healthcare information Web
site. Their mission is to provide objective, credible and trusted
healthcare information and to help people play an active role in
managing their own health. Consumers can access health news,
articles, research reports, condition-specific centers and
support communities, interactive tools and programs, as well as
online health and lifestyle product catalogues and ordering
services.
Hospice Related Sites
- AMERICAN ACADEMY OF FAMILY PHYSICIANS
HOSPICE IN NURSING HOMES INFO
www.aafp.org/patientinfo/hospice.html
Information about what kind of hospice services are available
to patients and their loved ones when the patient is in a nursing
home.
- AMERICAN ACADEMY OF HOSPICE & PALLIATIVE
MEDICINE
www.aahpm.org
Hospice physicians organization
- AMERICAN HOSPICE FOUNDATION
www.americanhospice.org
The American Hospice Foundation's mission is to open new
doors to hospice care so that a dignified death at home is an
option for all Americans, and grief support is readily available
for all adults and children.
- AMERICANS FOR BETTER CARE OF THE DYING
www.abcd-caring.com
ABCD is a non-profit public charity dedicated to social,
professional, and policy reform aimed to improve the care system
for patients with serious illness, and their families.
Among ABCD's fundamental goals is that each dying person
will find available a basic service array that will leave him or
her free to concentrate on the human development and spiritual
growth ... [known]to be possible at this time.
- BRUDERHOF GRIEF COMPANION
www.griefcompanion.org
Features writings from a variety of classic and contemporary writers
that other grieving people have found helpful and comforting. Four
full-length books, including the NY Times bestseller "She Said Yes"
(The story of Cassie Bernall, one of the Columbine victims), are fully
downloadable as as a public resource.
Everyone grieves differently. But no one needs to carry grief alone.
Whatever loss you are grieving, here you can share your loss with
others, and find material that other grieving people have found helpful
and comforting. Grieving takes time. Take time to grieve.
- CENTER TO ADVANCE PALLIATIVE CARE
www.capc.org
C.A.P.C. offers detailed and practical information to help an
institution establish a palliative care program, covering needs
assessment, business planning, reimbursements, delivery models,
interdisciplinary teams, program operations and evaluation.
Features include: Technical assistance series by Diane Meier, MD,
co-director of the Center to Advance Palliative Care, on the
design, development and management of hospital-based palliative
care services. An extensive collection of documents to help
"make the case" for a palliative care program. Case
Studies - how other institutions have developed palliative care
programs. Information on conferences, forums and training
seminars offered by the Center.
- CENTERING CORPORATION
www.centering.org/
The Centering Corporation distributes books dealing with grief
and helps promote workshops dealing with grief. They have an
extensive listing of resources to help those working through
their grief as well as resources for professionals and others.
- CHILDREN'S HOSPICE INTERNATIONAL
www.chionline.org
See the description above in the "Links to Children's
Resources" above.
- END-OF-LIFE: EXPLORING DEATH IN AMERICA
(FROM NPR)
www.npr.org/programs/death
This is the web page of National Public Radio presenting
information on end-of-life experiences in America and past
programs from NPR. Excellent!
- END-OF-LIFE PHYSICIAN EDUCATION RESOURCE
CENTER
www.eperc.mcw.edu/
EPERC (End of Life Physician Education Resource Center)
currently hosts a Web site that is a source for educational
materials and information about end of life issues. EPERC is
available online to assist physician educators and others in
locating high-quality, peer-reviewed training materials. This Web
site supports the identification and dissemination of information
on EOL training materials, publications, conferences, and other
opportunities.
- FUNERAL CONSUMERS ALLIANCE
www.funerals.org
Funeral Consumers Alliance is dedicated to a consumer's
right to choose a meaningful, dignified, affordable funeral and
provides information on funeral choices and options, monitors the
funeral industry trends and practices (exposing exploitation
within the funeral industry), serves as a consumer advocate for
reforms, refers individual inquiries to appropriate societies and
agencies supplying local services.
- GRIEFNET
www.griefnet.org
GriefNet is an Internet community of persons dealing with
grief, death, and major loss; with 37 email support groups and
two web sites. They have an integrated approach to on line grief
support which provides help to people working through loss and
grief issues of all kinds. Their companion site, KIDSAID,
provides a safe environment for kids and their parents to find
information and ask questions.
- GRIEVINGCHILD.ORG
www.grievingchild.org/
The Dougy Center, the first center in the US to provide peer
support groups for grieving children, offers excellent resources
for adults and children.
- GROWTH HOUSE ORGANIZATION
www.growthhouse.org
Growth House is the largest international gateway to resources
for life-threatening illness and end of life care. Their primary
mission is to improve the quality of compassionate care for
people who are dying through public education and global
professional collaboration.
- HOSPICE CARE WEB RING
http://www.geocities.com/Wellesley/3924/hosring.html
The Hospice Patients Alliance website is a member (or ring) of
the Hospice Care Web Ring. This is one of the main hospice web
rings which provides a listing of sites all related to hospice.
In a web ring, each member website forms one "ring" of
the webring chain, and you can "surf" from site to site
by clicking on the "Next" link at the webring logo
(like we have on our main page)
-
HOSPICE CHOICES
www.hospicechoices.com/
HospiceChoices is a hospice specific site with an emphasis on employment and business operations assistance, and offers one easy location for those interested in exploring hospice opportunities and provides hospice organizations a place to meet.
Provides information about pursuing or learning more about a career in hospice or, for hospice agencies, a place to locate assistance in staffing, operations or technical matters.
-
HOSPICE EDUCATION INSTITUTE
www.hospiceworld.org/index.htm
The Hospice Education Institute provides information and education about the many facets of
caring for the dying and the bereaved. You can call its "HospiceLink" at 800-331-1620 to help find a hospice in any area of the United States.
- HOSPICE HANDS WEB RING
http://www.webring.org/cgi-bin/webring?home&ring=hospice
The Hospice Patients Alliance website is a member (or ring) of
the Hospice Hands Web Ring. This is one of the main hospice web
rings which provides a listing of sites all related to hospice.
In a web ring, each member website forms one "ring" of
the webring chain, and you can "surf" from site to site
by clicking on the "Next" link at the webring logo
(like we have on our main page)
- JOURNEY OF HEARTS: A HEALING PLACE
www.kirstimd.com
If you or someone you know is having difficulty with grief,
loss and the changes that occur after losing a loved one, check
out this website! A really healing place on the web. Quotes from
the web home page follow:
"This website is the creation of a physician with
contributions from many colleagues, friends, and website
visitors. It is the combined effort of those who have experienced
many different types of losses."
"This website is for anyone who has ever experienced a loss
or a significant life changes. It is well-known that losses and
changes can impact a person's life--forever. The losses
referred to on this site can be acute or long-standing and can
result in feelings of grief, stress, depression, loneliness or
helplessness."
"This website is designed to be a place for resources and
support to help those in the grief process following a loss or a
significant life change. This is a process that does not occur
over night, it may take weeks, months, years, or even a life
time--depending on the person and the type of loss...."
- KATHLEEN S. BAIRD, Ed.D., RN INFORMATION
WEBPAGE
http://dwp.bigplanet.com/nurseinform/hospicelinks
This site is an excellent resource for anyone interested in
hospice and end-of-life issues from almost any angle. Dr. Baird
has put together a very large list of links to sites covering
many aspects of health care in addition to hospice. This site is
well worth visiting!
-
http://kidsaid.com/kids2kids.html
- NIH: SYMPTOMS IN TERMINAL ILLNESS
www.nih.gov/ninr/end-of-life.htm
For information on the symptoms manifested in particular
terminal illnesses.
- SERENITY MUSIC - ONLINE LISTENING POST
www.serenitymusic.com/listen.html
Music can play a very important part in facilitating a death
with dignity and peace. Serenity's music offerings are
uplifting and exquisitely beautiful. You can hear some of their
music at their online listening post. At this website you can
browse selections from the Serenity healing music catalogue, in
RealAudio and .wav formats
Serenity will also send you free audio cassette catalogs of their
music (112 minutes of music). Just fill out their convenient free cassette order form. (No, there is no cost or
obligation for the audio catalogs, and they are yours to keep).
- Hospice Spiritual Resources
www.soulandspirit.org
Hospice Spiritual Resources shares insights into how one's soul and the spirit of our creator weaves together through time from birth to death. It is on soul care, and how, one's life and one's dying reveals what is most sacred to us throughout the course of a lifetime. This is the website of Rev. Sam Oliver, well-known hospice spiritual counselor. Rev. Oliver is the author of What the Dying Teach Us: Lessons On Living available through Amazon.com.
- GRIEF COUNSELING FOR CHILDREN
www.recover-from-grief.com/grief-counseling-for-children.html
Grief Counseling for children
- WIDOW NET
www.widownet.org/
Provides information and self-help resources for, and by,
widows and widowers. Topics covered include grief, bereavement,
recovery, and other information helpful to all who have suffered
the death of a spouse or life partner.
Internet Search and Library Resources
- INTERNET PUBLIC LIBRARY
www.ipl.org
Connect to and search through libraries all over the world for
whatever you want, access newspaper articles all over the world
from any paper with internet sites (you'd be surprised how
many papers are on the internet! Excellent resource for research.
Links to national newspapers sites (and very likely even your own
local papers) are listed.
- All 4 One
http://all4one.searchallinone.com/
A meta-search engine that allows you to search with several search engines all at once.
- ASKNETSCAPE.COM
www.asknetscape.com
AskNetscape provides a world of information about the internet.
- DOGPILE.COM
www.dogpile.com
An excellent meta search engine for quickly finding what you
want. If you don't see what you want on your first search,
make sure your "keywords" are exactly what topic
you're interested in, and see what each search engine finds.
How you search is much more important than which search engine
you use. The words you search for are the most important, but if
you add too many, you may not find as many sites.
- GENIEKNOWS.COM
www.genieknows.com
Another excellent meta search engine that searches through 26
other search engines to get you the information you need. Very
relevant results!
- GOOGLE.COM
www.google.com
One of the most popular search engines on the net.
- INFIND.COM
http://www.infind.com
InFind is a meta search engine. Its search results are
generated from calls to other search engines on the Web.
- IXQUICK.COM
www.ixquick.com
An excellent meta search engine for quickly finding what you
want.
-
KILLERINFO.COM
www.killerinfo.com/
An excellent meta-search engine for quickly finding what you want.
- MAMMA.COM
www.mamma.com
Mamma.com, which bills itself as "The Mother of all
Search Engines," is a meta search engine that returns
results from the major search engines and numerous ecommerce
databases
- METACRAWLER.COM
http://www.metacrawler.com
MetaCrawler queries the other search engines, organizes the
results into a uniform format, ranks them by relevance, and
returns them to the user.
- OINGO.COM
www.oingo.com
Oingo says its meaning-based technology returns search results
that traditional text-based search engines can't match.
- PLANETCLICK.COM
www.planetclick.com
PlanetClick.com bases its search results on consumer rankings;
sites that rate highest with consumers show up at the top of
search result lists. Sites listed on PlanetClick.com are
submitted, rated and reviewed by consumers.
- PROFUSION.COM
www.profusion.com
Meta search engine maintained by the University of Kansas
- SMARTENGINE.COM
www.smartengine.com
SmartEngine is a meta search portal "specifically
tailored to a more intelligent audience." SmartEngine says
it delivers these goods with a convenient SmartGuide directory of
websites and a "simple, uncluttered layout for easy
navigation." It offers news headlines and services such as
free Web-based email, free Internet access and free audio players
and tuners.
Medical - Health Care Ethics
and Standards of Care Related Sites
Codes of ethics are available at each of the various health
care professions organization's websites. For example,
medical codes of ehthics are found at the American Medical
Association (and many other medical organizations) website,
Nursing codes of ethics are found at the American Nursing
Association's website.... If you search for each category of
health care profession, as well as searching for "code of
ethics" you should be able to locate any code of ethics
which you wish to view.
- AMERICAN HEALTH DECISIONS
www.ahd.org
American Health Decisions is a national coalition of
citizens' groups concerned about ethical issues in health
care. A non-profit organization, American Health Decisions helps
people understand health care choices, articulate the values that
shape them, and participate in the health policy process. Our
organizations also work to empower individuals to participate
fully in personal choices affecting their own health care.
American Health Decisions includes affiliated associations in
thirteen states as well as individuals throughout the country.
Members of American Health Decisions sponsor community meetings,
local study groups, educational programs, and public opinion
research projects. These activities place relevant questions and
issues before citizens, enabling them to identify their concerns
and priorities and play an active role in shaping public policy.
- AMERICAN HEALTH QUALITY ASSOCIATION
www.ahqa.org
The American Health Quality Association represents Quality
Improvement Organizations (QIOs) and professionals working to improve the
quality of health care in communities across America. QIOs share information
about best practices with physicians, hospitals, and nursing homes. Working
together with health care providers, QIOs identify opportunities and provide
assistance for improvement.
- AMERICAN SOCIETY OF LAW, MEDICINE &
ETHICS
www.aslme.org
The American Society of Law, Medicine & Ethics is a
nonprofit educational and research organization which
"provides a forum for high-quality debate, scholarship, and
critical thought for the community of professionals at the nexus
of law, health care, and ethics. [They've] been fulfilling
this mission since the Society was founded in 1911....
ASLME's membership includes attorneys, physicians, ethicists,
nurses, allied health professionals, hospital administrators,
risk managers, social workers, academics, and students who come
together to examine the crucial questions of our times."
"ASLME has engaged in and helped shaped the dialogue at the
national level, dealing with such varied issues as managed care
decision making and utilization, medical record privacy,
pediatric controversies, end-of-life decision making,
implications of the human genome project, and pain
undertreatment."
- BIOETHICS.NET
www.med.upenn.edu/~bioethic/
Bioethics.net is the Internet's first and largest site on
bioethics, visited (according to Medical Matrix) by more than any
other bioethics site on the Internet. bioethics.net is produced
and supported by the Center for Bioethics at the University of
Pennsylvania.
- NATIONAL ACADEMY OF ELDER LAW ATTORNEYS
www.naela.org
The mission of NAELA is to enable elder law attorneys to
identify and meet client needs through the exchange of ideas and
information on substantive elder law issues and the management of
successful elder law practices. NAELA promotes improvement in
substantive law, legal education, and ethical guidelines in
serving older persons. NAELA serves as a key public policy
advocate on behalf of older persons.
- JOINT COMMISSION ON ACCREDITATION
OF HEALTHCARE ORGANIZATIONS (JCAHO)
www.jcaho.org
The Joint Commission On Accreditation of Healthcare
Organizations sets quality assurance standards of care for all
types of healthcare facilities and organizations. If the hospice
agency your loved one is using is "Joint Commission
accreditted," then they have to comply with even higher
standards than the State and Federal Government require!
Healthcare agencies proudly display plaques certifying that they
are "JCAHO accreditted" and will be eager to avoid any
loss of this certification by providing you with appropriate
care. If a JCAHO accredited healthcare agency/hospice refuses to
provide appropriate care, you should make a complaint to
JCAHO's offices. You can directly make a complaint over the
Internet by accessing JCAHO's website above and clicking on
the "General Public Menu" and then clicking on the
"Reporting a Complaint" selection you will see. Also,
you can write to JCAHO at: 1 Renaissance Boulevard, Oakbrook
Terrace, Illinois 60181 Tel. 630-916-5800 Fax. 630-792-5005
Mental Health Related Sites
- NATIONAL INSTITUTE OF MENTAL HEALTH
www.nimh.nih.gov/
The National Institute of Mental Health provides information
on all aspects of mental health care and treatment, offers the
latest information from NIMH about the symptoms, diagnosis, and
treatment of various mental illnesses. Included are brochures and
information sheets, reports, press releases, fact sheets, and
other educational materials. Information is available in both
English and Spanish. If you know anyone suffering from
depression, anxiety or other psychological problems, this is a
wonderful resource to get help.
- NATIONAL INSTITUTE OF MENTAL HEALTH: Depression,
Awareness, Recognition and Treatment Program (D/ART)
www.nimh.nih.gov/dart/index.htm
This is a National Institute of Mental Health program designed
to help reduce the suffering of those with depression. If
you're going through depression or know of someone
experiencing depression, check out this site!
Nursing Related Sites
- ALLNURSES.COM
www.allnurses.com
An excellent resource listing many nursing websites,
information for just about any specialty in nursing.
- AMERICAN NURSES ASSOCIATION - NURSINGWORLD
www.nursingworld.org/
The American Nurses Association is the primary professional
nurses association in our country, with links to many other
important sites, resources and publications. The ANA works to
promote quality professional nursing and to advance the cause of
ethical nursing care which provides high quality nursing care to
the public.
- AMERICAN SOCIETY OF PAIN MANAGEMENT NURSES
www.aspmn.org
The American Society of Pain Management Nurses is an
organization of professional nurses dedicated to promoting and
providing optimal care of patients with pain, including the
management of its sequelae. This is accomplished through
education, standards, advocacy, and research. You can obtain
nursing pain management standards of care from ASPMN.
Tel. 888-342-7766
- HEALTHCARE JOB BANK
www.healthcarejobbank.com
Healthcare Job Bank specializes in finding nurse employment, LVN, LPN and RN jobs, for all nursing areas of employment and specialties, with our professional nurse job staffing. Jobs can be posted on our Nursing jobs lists for medical jobs including nurse employment with hospitals, travel nurse agencies and RN Jobs in health care.
- HPNA - HOSPICE & PALLIATIVE NURSES
ASSOCIATION
www.hpna.org/
The Hospice and Palliative Nurses Association is the leading
association for professional nurses working in the hospice
industry. This is the place for professional hospice nurses to
get up to date information on the latest developments in the
field, information on standards of care, practice, publications
and links to other important sites.
- NATIONAL ASSOCIATION OF PRO-LIFE NURSES
www.nursesforlife.org
NAPN's mission statement is: "To promote a respect
for every life from conception to natural death and to affirm
that destroying that life for whatever reason and by whatever
means has no place in good nursing practice."
- NURSE PORTAL
www.nurseportal.net
Nurse Portal has several hundred links to sites related to nursing including all state boards of nursing, nursing organizations and specialties, nursing education, nursing blogs and forums as well as many others.
- NURSINGCENTER.COM
www.nursingcenter.com
NursingCenter.com offers a wide variety of resources for
nurses in practice, education, research, and nursing students.
Features include interactive Continuing Education offerings;
Reuters-delivered healthcare newsfeeds; search capability;
enormous information resources and services to the nursing
community, including many nursing journal articles from numerous
leading publications. targeted peer consultation forums,
professional career opportunities; databases of nursing
organizations; and Continuing Education requirements of State
Boards of Nursing.
- NURSING LEARNING RESOURCE CENTER
AT THE INDIANA STATE UNIVERSITY SCHOOL OF NURSING
http://web.indstate.edu/nurs/LRC/lrcpg.htm
The Nursing Learning Resource Center has a vast amount of
information for nurses with links to many other very important
sites for nurses.
- RN MAGAZINE'S WEBSITE
www.rnweb.com
An excellent resource on nursing providing information on all
aspects of nursing.
- TOP TEN NURSING SITES
Top Ten Nursing Sites
The "Top Ten Nursing Sites" is a directory of
hundreds of sites related to nursing care or of interest to
nurses. Hospice Patients Alliance is a member of the "Top
Ten Nursing Sites" web directory (we're not number 1 -
10 among the nursing sites, though).
- THE NURSING WEB RING
www.geocities.com/HotSprings/Spa/3896/ringindex.html
This is a web ring consisting of many nursing related sites,
by nurses and for nurses. In a web ring, each member website
forms one "ring" of the webring chain, and you can
"surf" from site to site by clicking on the
"Next" link at the webring logo (like we have on our
main page).
- OTHER NURSING WEB RINGS
www.hospicepatients.org/webring-page.html
Several other nursing webrings are listed at this page on our
site.
Pain Related Sites
- AMERICAN ACADEMY OF PAIN MEDICINE
www.painmed.org
The mission of the American Academy of Pain Medicine is to
provide for quality care to patients suffering with pain, through
the education and training of all physicians, through research,
and through the advancement of the specialty of Pain Medicine.
Tel. 847-375-4731
- ALLIANCE OF STATE PAIN INITIATIVES
http://aspi.wisc.edu/
Cancer Pain Initiatives endorse and recommend the approach to
cancer pain management first articulated by the World Health
Organization and later detailed by the Agency for Health Care
Research and Quality Clinical Practice Guideline,
Management of Cancer Pain. [See recommended reading list.]
Working collaboratively with other organizations, such as the
American Cancer Society, the Agency for Health Care Policy and
Research, the Oncology Nursing Society, the American Pain
Society, the National Cancer Institute's Cancer Information
Service, and others, Alliance of State Pain Initiatives have participated in
numerous outreach and educational programs to improve health care
professionals' ability to assess and manage cancer pain.
Initiatives have also been active in addressing institutional and
regulatory barriers to the treatment of cancer pain.
- AMERICAN CHRONIC PAIN ASSOCIATION
www.acpa.org
Provides peer support and coping skills to anyone with chronic
pain.
- AMERICAN PAIN FOUNDATION
www.painfoundation.org
The American Pain Foundation is a nonprofit information
resource and patient advocacy organization serving people with
pain. Our mission is to improve the quality of life of people
with pain by providing practical information for patients,
raising public awareness and understanding of pain, and
advocating against barriers to effective treatment. We represent
exclusively the interests of people who suffer from pain and we
fill the need for a grassroots, consumer-driven, patient-focused
organization promoting better pain management.
- AMERICAN PAIN SOCIETY
www.ampainsoc.org
"The AMERICAN PAIN SOCIETY(APS) is a multi-disciplinary
organization of basic and clinical scientists, practicing
clinicians, policy analysts, and others. The mission of the
American Pain Society is to advance pain-related research,
education, treatment and professional practice. The society was
founded in 1978 as a national chapter of the International
Association for the Study of Pain (IASP) and now includes more
than 3,800 physicians, nurses, psychologists, dentists, basic
scientists,pharmacologists, therapists and social workers who
research and treat pain and advocate for patients with pain.
You can search for a pain treatment facility. They have
much vital information about pain management, including treating
pain at the end of life, and a large listing of other
pain management resources for pain patients. An important
resource!
- CANCER-PAIN.ORG
www.cancer-pain.org
Connect to the latest and most accurate information on
state-of-the-art management of cancer pain for patients,
caregivers and healthcare professionals.
- CITY OF HOPE PAIN RESOURCE CENTER
www.cityofhope.org/mayday
This web site provides a variety of materials including pain
assessment tools, patient education materials, quality assurance
materials, research instruments and other resources.
- THE MAYDAY PAIN PROJECT
www.painandhealth.org
This web site provides a guide and index of internet
information to those in pain. This site is targeted to care
givers, family and friends of those suffering from pain.
- PAIN AND THE LAW
www.painandthelaw.org/
This site focuses primarily on the legal issues involving pain
management and palliative care
- PAIN EDUCATION FOR PATIENTS, FAMILIES AND
NURSES
www.nursing.uiowa.edu/sites/pedspain/index.htm
An excellent resource for information about treating pain such
as cancer pain, especially in children, this site is quite
helpful, and is still being updated.
- PAINLINK
http://www.edc.org/PainLink
PainLink is a virtual community of health professionals
working in institutions that are committed to alleviating pain.
It is an initiative of education development center. Membership
benefits for healthcare institutions include technical
assistance, teaching Cases, access to extensive pain management
resources and member discussions.
Public Policy and Access to Political and Government
Representative Sites
- THE CENTER FOR PUBLIC INTEGRITY
www.publicintegrity.org
One of the most important books on the media and public
policy:
Off The Record
What Media Corporations Don't Tell You
About Their Legislative Agendas
Washington, DC 2000
A revealing inside look at how the media not only reports the
news and events of our society, but actually influences the
government and public opinion intentionally. If you ever wonder
why you don't read, see or hear of many important stories
affecting our nation, important stories about hospice as well,
then get a copy of this book. Some consider the media a
"fourth" branch of government, because its ability to
influence public policy is so pervasive.
You can purchase a copy at the Center's website at www.publicintegrity.org
Charles Lewis is the Executive Director of The Center and is a
former producer of the CBS News program 60 Minutes.
- FIND YOUR CONGRESSMEN
www.firstgov.gov
Email is not effective in communicating with the US
Congressional Representatives and Sentators. If you want results,
please send them a hard copy letter by US Mail! They get hundreds
of thousands of emails and often cannot even look at them.
- VOTENET.COM
Votenet.com: The Citizen's Guide to
Congress
(For information on how to contact your State and Federal
representatives, the laws being passed or proposed.
Social Worker Related Websites
- SOCIETY FOR SOCIAL WORK LEADERSHIP
IN HEALTH CARE
www.sswlhc.org
"The Society for Social Work Leadership in Health Care is
an association, 1500 members strong, dedicated to promoting the
universal availability, accessibility, coordination, and
effectiveness of health care that addresses the psychosocial
components of health and illness. Vision: To model and promote
excellence of social work leadership in health care. Mission
Statement: To be the primary professional organization that
leads, promotes, develops, and supports social work values,
practice, and leadership in health care." This Society is
directly associated with the well-known American Hospital
Association which advocates for the interests of hospitals
nationwide.
If you have questions about hospice, we hope that you will
take the time to visit the hundreds of pages at our website and read
our Guide to Hospice
Care.
Hospice Patients Alliance affirms that all human life is
inherently valuable and that the role of hospice nurses,
physicians and all other staff is to alleviate suffering and
provide comfort for the sick and dying without sanctioning or
assisting their suicide. A death with dignity allows for a
natural death in its own time, while doing everything possible to
assure relief from distressing symptoms. Hospice Patients
Alliance works hard to promote quality hospice care throughout
the USA. If you would like to support our mission, we hope you
wille consider supporting our mission through a donation.
Hospice Patients Alliance is a 501(c)(3) charitable nonprofit
corporation and your donations are deductible to the full extent
allowed by law.
Sign up for the Hospice-Issues Online Email Discussion Group
at Hospice Patients Alliance
http://lists.hospicepatients.org/mailman/listinfo/hospice-issues
Click on the Hospice Issues link above and then you can sign
up to join the discussion of issues in hospice and end of life
care, and you will begin to receive email messages from the
members of the discussion group. All you need to do is enter your
email address, along with your own password, and click the
"Subscribe" button.
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