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Hospice Patients Alliance: Consumer Advocates


LINKS TO OTHER IMPORTANT
RELATED SITES





Our home page is located at www.hospicepatients.org

We have divided up the list of other sites according to different categories, however some sites cover more than one category, so you may wish to look at other categories as well for information.

  1. ACCESSING THE FEDERAL LAWS GOVERNING HOSPICE, LEGAL INFORMATION AND U.S. GOVERNMENT SITES

  2. ACCESSING YOUR STATE'S LAWS GOVERNING HOSPICE

  3. LIST OF ALL STATE WEBSITES:
    ACCESSING YOUR STATE'S OWN INDIVIDUAL WEBSITE


  4. LINKS TO CHILDREN'S RESOURCES

  5. LINKS TO SENIOR CITIZEN RESOURCES

  6. OTHER IMPORTANT LINKS

    This section of links is divided up into the following areas:
    Advocacy, AIDS, Anti-Euthanasia cancer, caregiver support, general health care, hospice, internet resources, medical-health care ethics, mental health, nursing, pain, and public policy & access to political and government representatives, Social Worker Websites.

  7. LINKS TO FILE A COMPLAINT ABOUT HOSPICE CARE

    (To improve care for your loved one or others who require services)

  8. LINKS TO REPORT FRAUD IN HOSPICE

    Information on reporting fraud to the U.S. Justice Department (U.S. Attorney's Office), U.S. Office of Inspector General (OIG), CMS (Centers for Medicare Services which administers Medicare for the U.S. Government)

Note: The following links connect to websites outside of the Hospice Patients Alliance website; they will open up in a separate browser window, while this page will remain.














Accessing The Federal Laws Governing Hospice,
U.S. Government and
Other Legal Information Sites

  • Federal Laws on Hospice: Code Of Federal Regulations
    (copy located on our site)
    Federal Uniform Standards of Care for Hospice
    42 CFR Ch IV Part 418

    By clicking here you will find the entire Hospice section provided on our website

  • Government Printing Office
    United States Code of Federal Regulations

    http://www.access.gpo.gov/nara/cfr/cfr-table-search.html

    For those who wish to directly access the entire federal hospice law for themselves. When you enter the site, search for the link to the Code of Federal Regulations for Hospice: cited as: 42 CFR 418.

  • Government Printing Office
    Proposed and recently adopted changes to the United States Code of Federal Regulations

    http://www.access.gpo.gov/su_docs/aces/aces140.html

    Search here to see if any changes were made recently to the laws governing hospice. When you enter the site, search for the link to the Code of Federal Regulations for Hospice: cited as: 42 CFR 418.

  • INDIANA UNIVERSITY LAW LIBRARY
    http://law.indiana.edu/lawlibrary/index.shtml

    An excellent site to find laws on any topics.

  • INTERNET LAWYER LIBRARY
    http://www.internetlawyer.com/start.htm

    To find federal and state laws on any topics, along with caselaw and specialty practice legal resources.

  • CORNELL UNIVERSITY LEGAL INFORMATION INSTITUTE
    http://www.law.cornell.edu

    Provides information on all aspects of the law (by source or jurisdiction), American Legal Ethics Library, search capability, codes, Constitution, Court opinions, and much more.



  • U.S. Government and Legal Related Sites


  • FIRSTGOV
    http://firstgov.gov

    An official U.S. government site that accesses all branches of federal government, its agencies, and has the ability to search by topic (not just U.S. agency), helps to find government services online. Also provides links to State and Local government websites.


  • ALL LAW - INTERNET LEGAL GATEWAY
    www.alllaw.com

    Provides information on all aspects of the law, lawyers, access to lawyers, reference material, search, codes, Constitution, Court opinions, and much more.


  • AMERICAN HEALTH LAWYERS ASSOCIATION
    http://www.healthlawyers.org

    A leading provider of education for attorneys dealing health care related issues, and through its Public Interest commitment, Health Lawyers "gives back" to society from its members' legal expertise. The tax-exempt association produces colloquium reports and other nonpartisan analyses that share Health Lawyers' expertise with policymakers, healthcare organizations, "think tanks," academia, media, the public, and others. Health Lawyers also encourages its members to contribute to the public interest through pro bono legal work and other community service activities.

  • AMERICAN SOCIETY OF LAW, MEDICINE & ETHICS
    www.aslme.org

    The American Society of Law, Medicine & Ethics is a nonprofit educational and research organization which "provides a forum for high-quality debate, scholarship, and critical thought for the community of professionals at the nexus of law, health care, and ethics. [They've] been fulfilling this mission since the Society was founded in 1911.... ASLME's membership includes attorneys, physicians, ethicists, nurses, allied health professionals, hospital administrators, risk managers, social workers, academics, and students who come together to examine the crucial questions of our times."

    "ASLME has engaged in and helped shaped the dialogue at the national level, dealing with such varied issues as managed care decision making and utilization, medical record privacy, pediatric controversies, end-of-life decision making, implications of the human genome project, and pain undertreatment."

  • THE ATTORNEYS FORUM
    www.theattorneysforum.com

    The Attorneys Forum - Legal help and Discussion Forums. Get free legal advice from Attorneys in your area.

  • FINDLAW.COM
    http://www.findlaw.com/

    Findlaw.com provides a wealth of information about the laws of our nation both State, federal and other and has lists of attorneys, search capability to find caselaw and discussions of the law in many specialties.

  • LAW.COM
    www.law.com

    Law.com offers comprehensive information and resources for attorneys, law students, law librarians and lawfirm management. It has a focus on serving professional attorneys, but also provides information for the general public. Also included are separate Law.com state websites for each state providing: local and state-wide news summaries and features; federal circuit and state court decisions (summarized and full text); highlights from law.com's national legal news; a state-specific legal practice guide.

  • LAWYERIQ
    www.lawyeriq.com/

    LawyerIQ.com is a free service for Internet visitors to help them find lawyer related resources quickly and easily. LawyerIQ.com has researched all the best lawyer websites on the Internet by category and provided a comprehensive listing to save you time and frustration.

  • THEATTORNEYSFORUM.COM
    www.TheAttorneysForum.com

    Attorney Help - Legal Help and discussion. Find Attorneys in your area.

  • THELAWENGINE.COM
    www.TheLawEngine.com/

    A large legal/law search site with an extensive directory of law and legal-related sites.

  • LEGALSURVIVAL.COM
    www.legalsurvival.com

    LegalSurvival.com is a comprehensive source of legal information, tools and news offering a wealth of free services such as newsletters, forms, FAQs, checklists, discussion forums and an attorney locator.

  • USLAW.COM
    www.uslaw.com

    USLaw.com provides legal information (for the public as well as for attorneys) on: crime and the courts, employment law, health and injury law, commercial law, real estate, family law, and much more. You can ask questions of lawyers, find attorneys, create documents and more.



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Accessing Your State's Laws Governing Hospice

  • INDIANA UNIVERSITY LAW LIBRARY
    www.law.indiana.edu/v-lib/

    An excellent site to find laws on any topics. For State laws on hospice, click on the "Browse by information type" button, then click on "State Government Servers." Scroll down to the State you live in and click on "Administrative Code" or "Code of Regulations" (names vary in each State). When you reach the Administrative Code or regulations for your State, use the "Search" button to find "hospice." You'll see a listing of laws governing hospice in your State.

  • DIRECT LINKS TO YOUR
    STATE'S ADMINISTRATIVE CODE
    State Hospice Codes

    We are working on collecting direct links to the State Hospice Code/Rules for each state. This is an incomplete listing at present, but if your state is here, you won't have to search at all, just click on the link for your state and you'll be taken directly to your state's own hospice code. If your state's Administrative Code/Rules for hospice are not listed, search at the link below "Internet Access to Rules." Remember that every licensed hospice must also fulfill the requirements of the U.S. Code of Federal Regulations (42 CFR ch. iv. Part 418 - Hospice).

  • INTERNET ACCESS TO RULES
    (STATE ADMINISTRATIVE CODE)
    http://www.nass.org/acr/internet.html

    This complete listing is posted by the National Association of Secretaries of State: Administrative Codes and Registers Section. To find State administrative rules, codes or laws on any topics. For State laws on hospice, click on your State and the link to the word "code," then use the "Search" button to find "hospice." You'll see a listing of laws governing hospice in your State.

  • CORNELL UNIVERSITY LAW LIBRARY
    http://wwwsecure.law.cornell.edu/topics/state_statutes.html#health

    Provides text from State laws of many states in the U.S.
    State laws governing hospice vary from State to State, and how they arrange the laws at their website also varies. You will need to click on the link for your State and then select or search for "hospice" (if hospice is available as a choice) or "Regulations." After that you should be at the state laws on hospice for your area.



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Other Important Links



This section of links is divided up into the following areas: Advocacy sites, AIDS, cancer, general health care, hospice, internet resources, medical-health care ethics, mental health, nursing, pain, and public policy/access to political and government representatives .

  • Advocacy and Prolife Advocacy Sites


  • ADVOCACYNET.COM
    http://advocacy-net.com/medicare-medicaidmks.htm

    Advocacynet.com has an extensive listing of sites with information about all aspects of Medicare and Medicaid. This site can help you quickly find what you need to know. (The Hospice medicare/medicaid benefit is already fully explained at our own website: Hospice Patients Alliance... see our home page at: www.hospicepatients.org]

  • ALLIANCE DEFENSE FUND
    www.alliancedefensefund.org

    The Alliance Defense Fund is a legal alliance defending the right to hear and speak the Truth through strategy, training, funding, and litigation. ADF was founded for a unique purpose: to aggressively defend religious liberty by empowering our allies, recognizing that together, we can accomplish far more than we can alone.

  • AMERICAN LIFE LEAGUE
    www.all.org/

    American Life League is the largest grassroots Catholic pro-life education organization in the United States. ALL is committed to the protection of all innocent human beings from the moment of creation to natural death. It is rooted in pro-life integrity that stands up for every innocent human being whose life is threatened by what Pope John Paul II called "the culture of death." That ranges from the single cell human embryo to the elderly, the infirm and others at risk of having their life terminated by acts of euthanasia. The pro-life position notes that neither abortion nor euthanasia can ever be medically necessary or morally permitted.

  • ASSOCIATION OF AMERICAN PHYSICIANS AND SURGEONS
    www.aapsonline.org/

    AAPS has been dedicated to the highest ethical standards of the Oath of Hippocrates and to preserving the sanctity of the patient-physician relationship and the practice of private medicine. AAPS is an outspoken advocacy group working to promote improvements in the health care system and on behalf of all patients and physicians.

  • ASSOCIATION OF PRO-LIFE PHYSICIANS
    www.prolifephysicians.org

    "One of the elements of the Hippocratic Oath was a vow not to kill the pre-born: ?I will neither give a deadly drug to anybody if asked for it, nor will I make a suggestion to this effect. Similarly, I will not give to a woman an abortive remedy.? We are exclusive Hippocratic physicians in this critical sense: we will not kill innocent people." Find a pro-life physician here.

  • CHOICE IS AN ILLUSION
    www.choiceillusion.org/

    "Choice is an illusion is a non-profit organization fighting against assisted-suicide and euthanasia. Founded by elder-rights attorney Margaret Dore and Alex Schadenberg, executive director of the Euthanasia Prevention Coalition. Choice is An Illusion is an organization working with many others to stop the exploitation of the vulnerable, shed light on the realities of assisted-suicide and euthanasia and promote the rights of the vulnerable.

  • CHRISTIAN MEDICAL AND DENTAL ASSOCIATION
    www.cmda.org

    The Christian Medical & Dental Associations (CMDA) serve as a voice and ministry for Christian doctors. They provide information about healthcare from the Christian perspective and have produced a video revealing how physician assisted suicide and euthanasia are not the "merciful" solution to end of life care and terminal illnesses.

  • COMPASSIONATE HEALTHCARE NETWORK
    www.chninternational.com

    CHN consists of both professional and lay people who CARE about the crisis medicine and healthcare is experiencing, and promote 'Aid in Living'. CHN opposes euthanasia by actively defending the inherent value of all human life. CHN's work is international, and comprises of a network of people who provide speakers and workshops; research data pertaining to euthanasia, assisted suicide, palliative care, Advance Directives, (living wills and protective medical documents) and videos, to professionals, students, Churches, the government, lay organizations, and individuals..

  • EUTHANASIA PREVENTION COALITION
    http://epcc.ca/

    The Euthanasia Prevention Coalition was established to prepare a well-informed, broadly based, network of groups and individuals who support measures that will create an effective social barrier to euthanasia and assisted suicide. Purpose: To preserve and enforce legal prohibitions and ethical guidelines prohibiting "mercy killing." To increase public awareness of hospice/palliative care. To promote improvement in the quality and availability of hospice/palliative care, and effective methods of controlling pain and suffering.

  • FAMILIES USA ORGANIZATION'S RESOURCES PAGE FOR HEALTH CARE ADVOCACY
    Families USA

    An excellent resource with information on Medicaid and many aspects of health care advocacy in our country.

  • FEMINISTS FOR LIFE
    www.feministsfor life.org

    "Pro-life feminists must work to address the root causes that drive women and men to the desperate act of euthanasia, assisted suicide and suicide by replacing suffering and isolation with love and compassion." - Serrin M. Foster, Exec. Dir., Feminists for Life of America
    Feminists For Life is a life affirming organization of men and women who support justice and equality, believe in equal rights regardless of gender, yet celebrate the differences especially that of a woman's life-giving capacity. FLF ... defends women's rights and believe that they do not come at the expense of others, especially those of our own preborn children... believe in a woman's right to control her body and she deserves this right no matter where she lives; even if she's still living inside her mother's womb ... FFL proudly continues in the pro-life tradition of our feminist foremothers, who recognized abortion as the ultimate act of violence against women and children, and envisioned a better world for all humankind...a world in which abortion would be unthinkable. "When we consider that women are treated as property, it is degrading to women that we should treat our children as property to be disposed of as we see fit." - Elizabeth Cady Stanton, Women's Rights Movement Organizer, October 16, 1878

  • HEALTH ADMINISTRATION RESPONSIBILITY PROJECT
    http://harp.org

    HARP is a resource for patients, doctors, and attorneys seeking to establish the liability of Managed Health Care Organizations and Nursing Facilities for the consequences of their decisions. They are concerned that in the headlong rush to "Efficient" Medical care, the organizations involved are losing sight of the "Quality" of the care they provide.

    As more and more "Incentives" to cut back on medical care are put in place by the new class of medical entrepreneurs, the patient often suffers. We feel that Counter-incentives must be applied, and they must be financial. The only such Counter-incentives available under our system are lawsuits for damages caused by excessive cost-cutting measures.

  • HEALTH CARE INFORMATION RESOURCES
    Consumer Advocates Links
    www-hsl.mcmaster.ca/tomflem/advocates.html

    This is a listing of health care consumer advocacy sites and is posted by the Health Care Information Resources of the McMaster University Health Sciences Library, Canada

  • HEALTH CARE PROBLEMS ARCHIVE
    www.healthcareproblems.org/

    The Health Care Problems Archive is dedicated to gathering information for the same purpose the orthopedic surgeon gathers information: to make possible diagnosis and treatment of a problem. Unlike the doctor, however, The Health Care Problems Archive does not attempt diagnosis or prescription. That's left to the reader. The Health Care Problems Archive does the first part of the surgeon's job. It collects information and assembles it for study.

  • HEALTH PRIVACY PROJECT
    www.healthprivacy.org/

    The Health Privacy Project is dedicated to raising public awareness of the importance of ensuring health privacy in order to improve health care access and quality, both on an individual and a community level. They are monitoring the HIPAA privacy regulations and enforcement of these laws as well.

  • HUMAN LIFE ALLIANCE
    www.humanlife.org

    Human Life Alliance is a pro-life organization dedicated to protecting human life from the moment of conception until natural death. HLA seeks to educate all people on life issues by ... opposing euthanasia in all its forms, both active and passive, and fighting for the protection of all human life including the terminally ill, elderly, disabled and medically vulnerable. HLA has an excellent pamphlet available online entitled "Imposed Death."

  • INTERNATIONAL TASK FORCE
    www.internationaltaskforce.org

    For detailed information on preventing euthanasia, assisted suicide, advance directives, assisted suicide proposals, "right-to-die" cases, euthanasia practices in the Netherlands, disability rights, pain control and much, much more. They also have a Protective Medical Decisions Document that is superior to many documents out there (living wills, advanced directives, etc.) You can contact them at 740-282-3810 or e-mail them at: info@iaetf.org. Prof. Rita Marker, P.O.Box 760, Steubenville, OH 43952

  • LIFE GUARDIAN FOUNDATION
    www.lifeguardianfoundation.org/

    For very complete information on the dangers of organ transplantation procedures, the reality of what is involved and how to protect yourself or your loved ones from organ plundering. Life Guardians states that: "The mission of the Life Guardian Foundation is to educate the public that life of the human person is a gift. Respect is owed to every human person regardless of their state of health throughout their entire lifespan from conception until his or her natural end.... It is irreverent to address a human person with terms such as ?brain dead,? ?vegetative state,? ?terminal condition,? and ?imminent danger of death.? Such designations have been proposed and are actively used for the sole purpose of demeaning and shortening life, as well as to hasten the death of a human person."

  • LIFE ISSUES.NET
    Life Issues.net

    One of the finest online libraries of articles written by many of the world's leading pro-life advocates and scholars, providing "clear thinking about crucial issues."

  • LIFE MATTERS WORLDWIDE
    www.lifemattersww.org/ServicesResources/CompassionMinistries/LIFT.aspx

    Life Matters Worldwide has created the LIFT program, a ministry of compassionate care to people with chronic or terminal illnesses. It includes their loved ones, who are facing extraordinary pressures that can be physically, emotionally, and spiritually draining. What does that mean? Briefly, it means helping a person through the last days of his or her life, volunteering, helping with needed tasks at home and easing the burdens patients and family members may be facing.

  • LIFETREE
    www.lifetree.org/

    LifeTree's mission is to raise awareness about the need to protect life, from its earliest beginnings to natural death.

  • NATIONAL ASSOCIATION OF PROLIFE NURSES
    http://nursesforlife.org

    NAPN is a not-for-profit organization uniting nurses who seek excellence in nurturing for all, including the unborn, newborn, disabled, mentally and or/physically ill, the aged and the dying.

  • NATIONAL ASSOCIATION TO STOP GUARDIAN ABUSE
    www.stopguardianabuse.org

    The National Association to Stop Guardian Abuse is an organization formed by victims and for victims of unlawful and abusive guardianships and conservatorships.

  • NATIONAL CENTER ON WOMEN & AGING
    www.heller.brandeis.edu.national

    The mission of the National Center on Women and Aging is to focus national attention on the special concerns of women as they age, to develop solutions and strategies for dealing with these concerns, and to reach out to women and organizations across the country, promoting the changes necessary to improve older women's lives. Telephone: 800-929-1995 or 781-736-3866; Email: natwomctr@brandeis.edu

  • NATIONAL COALITION FOR PATIENT RIGHTS
    www.nationalcpr.org/index.html

    This is a consumer advocacy group and non-profit organization dedicated to the premise that patients have the right to privacy when they consult a health-care professional. The interests of employers, insurers, government agencies, police and others should not be allowed to supersede that basic right. If your rights to privacy have been violated, we suggest that you contact this organization for more information about your rights and what you can do to stop the betrayal of your privacy rights in hospice care or any aspect of health care. You can make a difference!

  • NATIONAL CENTER ON ELDER ABUSE
    www.gwjapan.com/NCEA

    NCEA provides elder abuse information to professionals and the public; offers technical assistance and training to elder abuse agencies and related professionals; conducts short-term elder abuse research; and assists with elder abuse program and policy development. NCEA's website contains many resources and publications to help achieve these goalS. You can find many links to report elder abuse and find more information about protecting the elderly in our national community.

  • NOT DEAD YET
    www.notdeadyet.org/

    Not Dead Yet opposes a public policy that singles out individuals for legalized killing based on their health status. Such a policy violates the Americans With Disabilities Act, denies the disabled the equal protection of the law, and health professionals decide who is "eligible." In these days of cost cutting and managed care, Not Dead Yet doesn't trust the health care system, and neither should you. Moreover, assisted suicide proponents have a broader agenda that includes non-voluntary euthanasia. Not Dead Yet is working through legal action to protect the rights of the disabled. Telephone No. (708) 209-1500

  • PATIENT SAFETY
    www.patient-safety.com/

    This is an informative website that explains how patients may be blacklisted, how physicians protect each other, and nurses fail to report problems in health care settings, how malpractice is covered up and patients victimized. Blacklisting of patients does happen! Whistleblowers are blackballed and may never work in health care again!

  • PEOPLE'S MEDICAL SOCIETY
    www.peoplesmed.org

    One of the largest patient advocacy organizations in the U.S. which helps consumers make informed decisions about their insurance coverage.
    Telephone No. 410-997-9283

  • PHARMACY COMPOUNDING FACTS
    www.pharmacycompoundingfacts.org

    Revealing problems with pharmaceutical products and how they are formulated. Sometimes pharmacists do not provide the proper medication, in its full strength as ordered, or in a form that is uncontaminated with other products. Get the truth now!

  • PHYSICIANS FOR COMPASSIONATE CARE
    EDUCATIONAL FOUNDATION
    www.pccef.org

    The PCCEF affirms an ethic based on the principle that all human life is inherently valuable and that the physician's roles are to heal illness, alleviate suffering, and provide comfort for the sick and dying. PCCEF promotes compassionate care for severely ill patients without sanctioning or assisting their suicide.

  • PHYSICIANS FOR LIFE
    www.physiciansforlife.org/

    PHYSICIANS FOR LIFE exists to draw attention to the issues of abortion, euthanasia, .... [and others].

  • PHYSICIANS WHO CARE
    www.pwc.org

    PHYSICIANS WHO CARE believes the responsibility for medical care belongs first and foremost to physicians and patients. We affirm the right of the physician, as the provider of care, to diagnose, prescribe, test and treat patients without undue outside interference. We affirm the right of the patient, as the person most affected by care, to choose his or her own physician and help determine the type of treatment received. Telephone No. 800-800-5154

  • SOCIETY FOR HEALTHCARE CONSUMER ADVOCACY
    www.shca-aha.org

    The mission of the Society for Healthcare Consumer Advocacy is to lead the advancement of healthcare consumer advocacy by supporting the role of professionals who represent and advocate for consumers across the healthcare continuum. SHCA achieves its mission by: Providing its members with education, information, and networking opportunities. Serving as a resource for consumers, payers, the community, and other healthcare professions on issues such as: patient education, patients' rights, ethics, patient satisfaction/measurement, complaint management, customer service. This organization is associated with the American Hospital Association which advocates for the interests of hospitals nationwide.



  • AIDS Related Sites


  • AEGIS
    www.aegis.org

    Largest AIDS site of all. Contains many postings suitable only for medically educated, but also contains hundreds of thousands of postings for the layperson. The search engine is easy to use, which is good because the site is so large. The focus is local, national, and international.

  • AIDS.ORG
    www.aids.org

    One of the main AIDS organizations serving
    those dealing with AIDS related issues.

  • AIDS SERVICE ORGANIZATION - IMMUNET
    www.immunet.org

    Valuable resource for AIDS patients and family/caregivers.

  • AIDS TREATMENT NEWS - INTERNET DIRECTORY
    www.aidsnews.org

    You can access much information about AIDS Treatment at this site,
    along with links to many other AIDS-related sites.
    Tel. 1-800-TREAT-12 or Tel. 415-255-0588

  • HIV - INFOWEB
    www.infoweb.org

    An on-line library containing HIV and AIDS-related information. The HIV Infoweb is maintained online by volunteer efforts and has a large amount of information and links to other AIDS & HIV related sites.

  • THE BODY: AIDS/HIV Info Resource
    www.thebody.com/index.shtml

    An AIDS and HIV information resource. The Body's mission is to: 1.Use the Web to lower barriers between patients and clinicians 2.Demystify HIV/AIDS and its treatment; 3.Improve patients' quality of life; 4.Foster community through human connection.



  • Anti-Euthanasia Sites



  • PATIENTS RIGHTS COUNCIL
    www.patientsrightscouncil.org/site/

    For detailed information on euthanasia, assisted suicide, advance directives, assisted suicide proposals, "right-to-die" cases, euthanasia practices in the Netherlands, disability rights, pain control and much, much more. You can contact them at 740-282-3810 or e-mail them at: info@patientsrightscouncil.org. Prof. Rita Marker, P.O.Box 760, Steubenville, OH 43952

  • PHYSICIANS FOR COMPASSIONATE CARE
    EDUCATIONAL FOUNDATION
    www.pccef.org

    The PCCEF affirms an ethic based on the principle that all human life is inherently valuable and that the physician's roles are to heal illness, alleviate suffering, and provide comfort for the sick and dying. PCCEF promotes compassionate care for severely ill patients without sanctioning or assisting their suicide.



  • Cancer related sites


    Also see Pain sites below.

  • AMERICAN CANCER SOCIETY
    www.cancer.org

    A very helpful site. This is an organization that provides much support to those going through the trials of dealing with cancer. Support groups are available through the American Cancer Society.

  • AMERICAN COLLEGE OF PHYSICIANS
    HOME CARE GUIDE FOR ADVANCED CANCER

    www.acponline.org/public/homecare

  • AMERICAN SOCIETY OF CLINICAL ONCOLOGY
    www.asco.org

    Information and articles from the experts about cancer related research, treatment, and care during the last phases of life. This valuable site offers much information to the patient with cancer. Also provides links to other organizations with information relating to cancer and patient care.

  • CANCER CARE
    www.cancercare.org

    Cancer Care is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones. As the oldest and largest national nonprofit agency devoted to offering professional services, Cancer Care has helped over a million people nationwide through its toll-free Counseling Line and teleconference programs, its office-based services, and via the Internet; also publishes "Helping Hand," a useful resource guide for cancer patients and others. Includes resource information for caregivers.

  • CANCERFACTS.COM
    www.cancerfacts.com

    A portal for cancer information and support communities that offers a cancer-profiler which is helpful for the newly diagnosed, explaining different stages of cancer, treatment options and potential side-effects. Users can access official medical information, patient chat groups, information on clinical trials, and news and links for support groups.

  • CANCER INFORMATION SERVICES (NATIONAL CANCER INSTITUTE)
    www.cancer.gov

    For specific information on various forms of cancer, its symptoms, treatment & prognosis; also information on treating pain related to cancer; provides referrals to hospice, home care and support groups.

  • CANCER ON LINE.ORG
    www.canceronline.org

    Excellent resources for patients and their loved one related to cancer and pain management.

  • CANCERPAGE.COM
    www.cancerpage.com

    For the latest information on all types of cancer. Details about many forms of cancer, message boards, chat rooms and more.

  • CANCERTRACK.COM
    www.cancertrack.com

    For information on all types of cancer. Details about many forms of cancer, treatments, support groups, printed and online resources.

  • DANA-FARBER CANCER INSTITUTE
    www.dana-farber.org/can/resources/

    Dana-Farber Cancer Institute is a principal teaching affiliate of the Harvard Medical School and is among the leading cancer research and care centers in the United States. It is a founding member of the Dana-Farber/Harvard Cancer Center (DF/HCC), designated a comprehensive cancer center by the National Cancer Institute; with information on all types of cancer, treatments, support groups, printed and online resources.

  • FIND CANCER EXPERTS.COM
    www.findcancerexperts.com/

    Errors occur in the diagnosis of cancer. These mistakes can lead to incorrect treatment with serious medical complications. FindCancerExperts refers patients for EXPERT SECOND OPINIONS to NATIONALLY RECOGNIZED DOCTORS -- PATHOLOGISTS -- specializing in the tissue diagnosis of all cancer types. FindCancerExperts is a RAPID, CONFIDENTIAL & FREE SERVICE offering immediate access to the largest established national network of prominent pathology experts.

  • ONCOLINK
    oncolink.upenn.edu

    The University of Pennsylvania Cancer Center's website
    with vast information on cancer, symptom management,
    what's new, search topics and more



  • Caregiver Support Sites


  • CAREGIVER.COM
    www.caregiver.com

    This site contains back issues of Today's Caregiver Magazine, information on the "Sharing Wisdom Caregivers Conferences" and a discussion forum.

  • CAREGIVING.COM
    www.caregiving.com

    This site offers resources and support for family caregivers.

  • CARETHERE.COM
    www.carethere.com

    This site offers resources to help caregivers assess their needs; find medical, financial and legal information; connect with family and other caregivers; and locate local services and products.

  • CAREGIVER SURVIVAL RESOURCES
    www.caregiver911.com

    This website has all types of resources and a wealth of information, both general and specific. There are links to other health-related web sites, information on books, and disease-specific resources.

  • NATIONAL FAMILY CAREGIVERS ASSOCIATION
    www.nfcacares.org/

    NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones. NFCA espouses a philosophy of self-advocacy and self-care that is predicated on the belief that caregivers who choose to take charge of their lives, and see caregiving as but one of its facets, are in a position to be happier and healthier individuals. Through its services in the areas of education and information, support and validation, public awareness and advocacy, NFCA strives to minimize the disparity between a caregiver's quality of life and that of mainstream Americans.

  • NATIONAL ALLIANCE FOR CAREGIVING
    www.caregiving.org

    This site is a joint venture of many organizations designed to support family and professional caregivers. Includes the Family Caregiver Resource Connection, which reviews and rates hundreds of books, videos, websites, magazines, fact sheets and other resources addressing the range of issues and questions faced by family caregivers.

  • STRENGTH FOR CARING
    www.strengthforcaring.com/

    a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.

  • WEBOFCARE.COM
    http://www.webofcare.com/

    Web of Care is a virtual community for home caregivers. They support caregivers coping with a wide variety of conditions associated with aging, several childhood disabilities, AIDS, and many other chronic conditions that require support and care. Web of Care features hundreds of reliable, up-to-date articles reviewed by doctors, nurses and therapists.

    There are also hundreds of animated demonstrations on daily caregiving skills like feeding and diapering. The free "Ask an Expert" service provides direct e-mail answers to members' medical questions. Chat rooms, bulletin boards, free e-mail and free web pages facilitate interaction between our members. The Web of Care CareShop is a convenient online store stocked with thousands of home care supplies ranging from incontinence and wound care products to mobility aids and special bedding.



  • General Health Care sites


  • ACP-ASIM ONLINE - FIND IT
    SEARCH MEDICAL JOURNALS

    www.acponline.org/home/findit.htm

    The American College of Physicians-American Society of Internal Medicine (ACP-ASIM) is the nation's largest medical specialty society. Its mission is to enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine.

  • ADMINISTRATORS IN MEDICINE
    www.docboard.org

    If you want to check out a physician's background and record, this is the place to get that hard-to-find information. You can check the background of physicians in many States.

  • AGENCY FOR HEALTHCARE RESEARCH AND QUALITY
    (U.S. government site)
    http://www.ahrq.gov/

    An extremely useful site for accessing health care information. Especially relevant to hospice is their "Clinical Practice Guideline Number 9: Management of Cancer Pain" which sets out the nationally accepted standards for managing cancer pain which are followed by expert pain management specialists. The Agency for Healthcare Research and Quality Web site provides practical healthcare information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about healthcare issues.

  • AMERICAN ASSOCIATION OF PHYSICIANS AND SURGEONS
    http://www.aapsonline.org

    The American Association of Physicians and Surgeons works to promote excellence in health care and to reform the system so that physicians are allowed to practice in the best interests of the patient. AAPS affirms the original Hippocratic Oath and ethics which value the lives of the patients they serve. A wealth of information is available at their website. You can also contact them by phone at 1-800-635-1196

  • CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC)
    www.cdc.gov

    U.S. Government site providing most up-to-date information on diseases and prevention with links to other sites...health topics A-Z.

  • DOCTORLINE
    www.doctorline.com

    To find a doctor, an organization, or information on any disease, condition or medications, check this one out.

  • FRIENDS' HEALTH CONNECTION
    www.friendshealthconnection.org/
    Friends' Health Connection is a nonprofit support network that connects people with similar health problems for the purpose of mutual support. It helps individuals cope with illness through the power of friendship and provides two support networks: a Patient Network which connects individuals with health problems and a Caregiver Network which connects family members, friends and caregivers of people with health problems.

  • HARDIN MD - HARDIN META DIRECTORY OF INTERNET HEALTH SOURCES
    www.lib.uiowa.edu/hardin/md/index.html

    A very large directory of health, medical and other healthcare related sites on the web

  • HEALTHFINDER
    www.healthfinder.gov

    A gateway consumer health information web site from the United States government. Healthfinder® is a free gateway to reliable consumer health and human services information developed by the U.S. Department of Health and Human Services. Healthfinder® can lead you to selected online publications, clearinghouses, databases, web sites, and support and self-help groups, as well as the government agencies and not-for-profit organizations that produce reliable information for the public.

  • HEALTHLINKS.COM
    www.healthlinks.com

    The Health Links Directory is divided into 31 major categories and 168 sub-categories with over 400 specific healthcare subjects. Listings can be accessed by going to the directory and selecting a specific category - subcategory or by using the search box at the top of the page. Healthlinks.com has created several forums/bulletin boards including: Alternative Medicine, Diseases, Men's Health, Fitness, Mental Health, Nursing, Woman's Health, Dentistry, Nutrition and Healthcare Technology. They also have newsletters and mailing lists for different topics related to health. A wonderful resource.

  • INTERNET HEALTH DIRECTORY
    www.internet-health-directory.com/index.html

    An extensive listing of health care resources.

  • MAYO CLINIC HEALTH OASIS
    www.mayohealth.org

    Resources, Ask Mayo, Cancer Center, Diet & Nutrition, Heart Center, Pregnancy & Children, Medicine Center, Women's Health, etc.

  • MDCHOICE.COM
    http://www.mdchoice.com/pt/index.asp

    MDChoice.com calls itself "the ultimate medical information finder." This is a medical information portal with the capability of searching medical sites, journals and articles in an easily understood "user friendly" way. They have lists of diseases, medications, health news and you can search MEDLINE, CANCERlit, AIDSline and other medical databases. They have a second site for health care professionals located at: www.mdchoice.com/index.asp.

  • MEDCAST.COM
    www.medcast.com

    Medcast.com is a physician resource for medical information dealing with many medical specialties and areas of medical research.

  • MEDICAL TRIBUNE.COM
    www.medicaltribune.com

    Medical Tribune provides one of the most interesting magazines for on-line medical information covering the full range of health care and medical issues. A great resource for patients, families, physicians and other health care professionals, with links to other resources related to many different disease processes and health care support. Check it out!

  • MEDICINENET.COM
    www.medicinenet.com

    Medicine Net provides easily understood explanations of hundreds of diseases, conditions, procedures and tests, first aid, list of poison control centers, medications and their side effects, and a dictionary of thousands of medical terms. All content written by expert Board Certified medical doctors.

  • MEDICINELIST.COM
    www.medicine-list.com

    Medicine-list.com is an internet directory which provides an extensive listing of online resources dealing with all aspects of health care, including hospice.

  • MEDSCAPE.COM
    www.medscape.com

    Medscape.com provides one of the largest collections of full-text clinical medical articles and is a free searchable database for all types of medical information. This site is accessed by physicians for their own ongoing research and education. If you need information on a particular disease, condition or medical topic, you will find much help at this site. Medscape will be offering "Medscape Consumer" as another service. Medscape provides free access to MEDLINE, AIDSLINE and TOXLINE, and also provides daily medical news.

  • NATIONAL INSTITUTE OF HEALTH
    www.nih.gov/

    Vast amounts of information can be found here on many illnesses, medical treatment and resources.

  • NATIONAL LIBRARY OF MEDICINE
    www.nlm.nih.gov

    Excellent for learning about research on diseases, treatment and medical outlook. You can access MEDLINE from here and read scientific reports about all diseases and conditions in numerous medical journals from around the world.

  • NATIONAL WOMEN'S HEALTH RESOURCE CENTER
    http://www.healthywomen.org

    Healthwomen.org is the one-stop shop for women's health information on the web. This site includes "comprehensive information on women's health topics that will help you make informed health decisions."

    • "Since the late 1980s, the National Women’s Health Resource Center, Inc. (NWHRC) has helped millions of women educate themselves about the health topics that concern them the most. The non-profit organization, dedicated to helping women make informed decisions about their health, encourages women to embrace healthy lifestyles to promote wellness and prevent disease."



    • "As the national clearinghouse for women’s health information, providing access to health information and resources is [the] primary goal. The information ... provided is comprehensive, objective, and supported by an advisory council comprised of the nation’s leading medical and health experts."

    There is an "A to Z" topic index to search for different topics of interest, frequently asked questions and consumer tips on fitness, nutrition and disease prevention, as well as healthcare issues ranging from teen health to pregnancy to post-menopausal concerns."

  • NEW ENGLAND JOURNAL OF MEDICINE ON-LINE
    www.nejm.org

    Reporting the results of important medical research worldwide

  • NIH: HEALTH INFORMATION
    www.nih.gov/health

    A valuable resource with vast amounts of information.

  • PHARMACY LIBRARY
    http://info.lib.uh.edu/pharmacy/

    Links to many pharmacy-related websites, organizations, colleges, internet resources

  • REUTERS HEALTH INFORMATION SERVICES
    www.reutershealth.com

    Health information from Reuters, medical news, search medical news archives, search drug database and MEDLINE

  • WEBMD.COM
    www.webmd.com

    WebMD is a leading consumer-focused healthcare information Web site. Their mission is to provide objective, credible and trusted healthcare information and to help people play an active role in managing their own health. Consumers can access health news, articles, research reports, condition-specific centers and support communities, interactive tools and programs, as well as online health and lifestyle product catalogues and ordering services.



  • Hospice Related Sites


  • AMERICAN ACADEMY OF FAMILY PHYSICIANS
    HOSPICE IN NURSING HOMES INFO

    www.aafp.org/patientinfo/hospice.html

    Information about what kind of hospice services are available to patients and their loved ones when the patient is in a nursing home.

  • AMERICAN ACADEMY OF HOSPICE & PALLIATIVE MEDICINE
    www.aahpm.org

    Hospice physicians organization

  • AMERICAN HOSPICE FOUNDATION
    www.americanhospice.org

    The American Hospice Foundation's mission is to open new doors to hospice care so that a dignified death at home is an option for all Americans, and grief support is readily available for all adults and children.

  • AMERICANS FOR BETTER CARE OF THE DYING
    www.abcd-caring.com

    ABCD is a non-profit public charity dedicated to social, professional, and policy reform aimed to improve the care system for patients with serious illness, and their families.

    Among ABCD's fundamental goals is that each dying person will find available a basic service array that will leave him or her free to concentrate on the human development and spiritual growth ... [known]to be possible at this time.

  • BRUDERHOF GRIEF COMPANION
    www.griefcompanion.org

    Features writings from a variety of classic and contemporary writers that other grieving people have found helpful and comforting. Four full-length books, including the NY Times bestseller "She Said Yes" (The story of Cassie Bernall, one of the Columbine victims), are fully downloadable as as a public resource.

    Everyone grieves differently. But no one needs to carry grief alone. Whatever loss you are grieving, here you can share your loss with others, and find material that other grieving people have found helpful and comforting. Grieving takes time. Take time to grieve.

  • CENTER TO ADVANCE PALLIATIVE CARE
    www.capc.org

    C.A.P.C. offers detailed and practical information to help an institution establish a palliative care program, covering needs assessment, business planning, reimbursements, delivery models, interdisciplinary teams, program operations and evaluation. Features include: Technical assistance series by Diane Meier, MD, co-director of the Center to Advance Palliative Care, on the design, development and management of hospital-based palliative care services. An extensive collection of documents to help "make the case" for a palliative care program. Case Studies - how other institutions have developed palliative care programs. Information on conferences, forums and training seminars offered by the Center.

  • CENTERING CORPORATION
    www.centering.org/

    The Centering Corporation distributes books dealing with grief and helps promote workshops dealing with grief. They have an extensive listing of resources to help those working through their grief as well as resources for professionals and others.

  • CHILDREN'S HOSPICE INTERNATIONAL
    www.chionline.org

    See the description above in the "Links to Children's Resources" above.

  • END-OF-LIFE: EXPLORING DEATH IN AMERICA
    (FROM NPR)

    www.npr.org/programs/death

    This is the web page of National Public Radio presenting information on end-of-life experiences in America and past programs from NPR. Excellent!

  • END-OF-LIFE PHYSICIAN EDUCATION RESOURCE CENTER
    www.eperc.mcw.edu/

    EPERC (End of Life Physician Education Resource Center) currently hosts a Web site that is a source for educational materials and information about end of life issues. EPERC is available online to assist physician educators and others in locating high-quality, peer-reviewed training materials. This Web site supports the identification and dissemination of information on EOL training materials, publications, conferences, and other opportunities.

  • FUNERAL CONSUMERS ALLIANCE
    www.funerals.org

    Funeral Consumers Alliance is dedicated to a consumer's right to choose a meaningful, dignified, affordable funeral and provides information on funeral choices and options, monitors the funeral industry trends and practices (exposing exploitation within the funeral industry), serves as a consumer advocate for reforms, refers individual inquiries to appropriate societies and agencies supplying local services.

  • GRIEFNET
    www.griefnet.org

    GriefNet is an Internet community of persons dealing with grief, death, and major loss; with 37 email support groups and two web sites. They have an integrated approach to on line grief support which provides help to people working through loss and grief issues of all kinds. Their companion site, KIDSAID, provides a safe environment for kids and their parents to find information and ask questions.

  • GRIEVINGCHILD.ORG
    www.grievingchild.org/

    The Dougy Center, the first center in the US to provide peer support groups for grieving children, offers excellent resources for adults and children.

  • GROWTH HOUSE ORGANIZATION
    www.growthhouse.org

    Growth House is the largest international gateway to resources for life-threatening illness and end of life care. Their primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration.

  • HOSPICE CHOICES
    www.hospicechoices.com/

    HospiceChoices is a hospice specific site with an emphasis on employment and business operations assistance, and offers one easy location for those interested in exploring hospice opportunities and provides hospice organizations a place to meet. Provides information about pursuing or learning more about a career in hospice or, for hospice agencies, a place to locate assistance in staffing, operations or technical matters.

  • HOSPICE EDUCATION INSTITUTE
    www.hospiceworld.org/index.htm

    The Hospice Education Institute provides information and education about the many facets of caring for the dying and the bereaved. You can call its "HospiceLink" at 800-331-1620 to help find a hospice in any area of the United States.

  • JOURNEY OF HEARTS: A HEALING PLACE
    www.kirstimd.com

    If you or someone you know is having difficulty with grief, loss and the changes that occur after losing a loved one, check out this website! A really healing place on the web. Quotes from the web home page follow:

    "This website is the creation of a physician with contributions from many colleagues, friends, and website visitors. It is the combined effort of those who have experienced many different types of losses."

    "This website is for anyone who has ever experienced a loss or a significant life changes. It is well-known that losses and changes can impact a person's life--forever. The losses referred to on this site can be acute or long-standing and can result in feelings of grief, stress, depression, loneliness or helplessness."

    "This website is designed to be a place for resources and support to help those in the grief process following a loss or a significant life change. This is a process that does not occur over night, it may take weeks, months, years, or even a life time--depending on the person and the type of loss...."

  • KATHLEEN S. BAIRD, Ed.D., RN INFORMATION WEBPAGE
    http://dwp.bigplanet.com/nurseinform/hospicelinks

    This site is an excellent resource for anyone interested in hospice and end-of-life issues from almost any angle. Dr. Baird has put together a very large list of links to sites covering many aspects of health care in addition to hospice. This site is well worth visiting!

  • http://kidsaid.com/kids2kids.html

  • NIH: SYMPTOMS IN TERMINAL ILLNESS
    www.nih.gov/ninr/end-of-life.htm

    For information on the symptoms manifested in particular terminal illnesses.

  • SERENITY MUSIC - ONLINE LISTENING POST
    www.serenitymusic.com/listen.html

    Music can play a very important part in facilitating a death with dignity and peace. Serenity's music offerings are uplifting and exquisitely beautiful. You can hear some of their music at their online listening post. At this website you can browse selections from the Serenity healing music catalogue, in RealAudio and .wav formats

    Serenity will also send you free audio cassette catalogs of their music (112 minutes of music). Just fill out their convenient free cassette order form. (No, there is no cost or obligation for the audio catalogs, and they are yours to keep).

  • Hospice Spiritual Resources
    www.soulandspirit.org

    Hospice Spiritual Resources shares insights into how one's soul and the spirit of our creator weaves together through time from birth to death. It is on soul care, and how, one's life and one's dying reveals what is most sacred to us throughout the course of a lifetime. This is the website of Rev. Sam Oliver, well-known hospice spiritual counselor. Rev. Oliver is the author of What the Dying Teach Us: Lessons On Living available through Amazon.com.

  • GRIEF COUNSELING FOR CHILDREN
    www.recover-from-grief.com/grief-counseling-for-children.html

    Grief Counseling for children

  • WIDOW NET
    www.widownet.org/

    Provides information and self-help resources for, and by, widows and widowers. Topics covered include grief, bereavement, recovery, and other information helpful to all who have suffered the death of a spouse or life partner.



Internet Search and Library Resources


  • INTERNET PUBLIC LIBRARY 2
    www.ipl.org

    Connect to and search through libraries all over the world for whatever you want, access newspaper articles all over the world from any paper with internet sites (you'd be surprised how many papers are on the internet! Excellent resource for research. Links to national newspapers sites (and very likely even your own local papers) are listed. IPL 2 is a merger of the Internet Public Library (IPL) and the Librarians' Internet Index



  • All 4 One
    http://all4one.searchallinone.com/

    A meta-search engine that allows you to search with several search engines all at once.

  • ASK.COM
    www.ask.com

    Ask.com provides a world of information.

  • DOGPILE.COM
    www.dogpile.com

    An excellent meta search engine for quickly finding what you want. If you don't see what you want on your first search, make sure your "keywords" are exactly what topic you're interested in, and see what each search engine finds. How you search is much more important than which search engine you use. The words you search for are the most important, but if you add too many, you may not find as many sites.

  • GOOGLE.COM
    www.google.com

    One of the most popular search engines on the net.

  • IXQUICK.COM
    www.ixquick.com

    An excellent meta search engine for quickly finding what you want.

  • METACRAWLER.COM
    http://www.metacrawler.com

    MetaCrawler queries the other search engines, organizes the results into a uniform format, ranks them by relevance, and returns them to the user.

  • OINGO.COM
    www.oingo.com

    Oingo says its meaning-based technology returns search results that traditional text-based search engines can't match.

  • YAHOO.COM
    http://www.yahoo.com/

    One of the common search engines.



Medical - Health Care Ethics
and Standards of Care Related Sites


Codes of ethics are available at each of the various health care professions organization's websites. For example, medical codes of ehthics are found at the American Medical Association (and many other medical organizations) website, Nursing codes of ethics are found at the American Nursing Association's website.... If you search for each category of health care profession, as well as searching for "code of ethics" you should be able to locate any code of ethics which you wish to view.

  • AMERICAN HEALTH DECISIONS
    www.ahd.org

    American Health Decisions is a national coalition of citizens' groups concerned about ethical issues in health care. A non-profit organization, American Health Decisions helps people understand health care choices, articulate the values that shape them, and participate in the health policy process. Our organizations also work to empower individuals to participate fully in personal choices affecting their own health care.

    American Health Decisions includes affiliated associations in thirteen states as well as individuals throughout the country. Members of American Health Decisions sponsor community meetings, local study groups, educational programs, and public opinion research projects. These activities place relevant questions and issues before citizens, enabling them to identify their concerns and priorities and play an active role in shaping public policy.

  • AMERICAN HEALTH QUALITY ASSOCIATION
    www.ahqa.org

    The American Health Quality Association represents Quality Improvement Organizations (QIOs) and professionals working to improve the quality of health care in communities across America. QIOs share information about best practices with physicians, hospitals, and nursing homes. Working together with health care providers, QIOs identify opportunities and provide assistance for improvement.

  • AMERICAN SOCIETY OF LAW, MEDICINE & ETHICS
    www.aslme.org

    The American Society of Law, Medicine & Ethics is a nonprofit educational and research organization which "provides a forum for high-quality debate, scholarship, and critical thought for the community of professionals at the nexus of law, health care, and ethics. [They've] been fulfilling this mission since the Society was founded in 1911.... ASLME's membership includes attorneys, physicians, ethicists, nurses, allied health professionals, hospital administrators, risk managers, social workers, academics, and students who come together to examine the crucial questions of our times."

    "ASLME has engaged in and helped shaped the dialogue at the national level, dealing with such varied issues as managed care decision making and utilization, medical record privacy, pediatric controversies, end-of-life decision making, implications of the human genome project, and pain undertreatment."

  • BIOETHICS.NET
    www.med.upenn.edu/~bioethic/

    Bioethics.net is the Internet's first and largest site on bioethics, visited (according to Medical Matrix) by more than any other bioethics site on the Internet. bioethics.net is produced and supported by the Center for Bioethics at the University of Pennsylvania.

  • CALIFORNIA NURSES FOR ETHICAL STANDARDS
    www.ethicalnurses.org/

    California Nurses for Ethical Standards is committed to:
    Promote ethical standards of health care provided by nurses and other health care workers in health care facilities, in our communities, in our schools and in service to families through education, research, and training;
    Promote respect for the dignity and value of all human life including that of the preborn, newborn, physically and mentally disabled, aged and dying;
    Be advocates for the protection of rights of conscience;

  • NATIONAL ACADEMY OF ELDER LAW ATTORNEYS
    www.naela.org

    The mission of NAELA is to enable elder law attorneys to identify and meet client needs through the exchange of ideas and information on substantive elder law issues and the management of successful elder law practices. NAELA promotes improvement in substantive law, legal education, and ethical guidelines in serving older persons. NAELA serves as a key public policy advocate on behalf of older persons.

  • JOINT COMMISSION ON ACCREDITATION
    OF HEALTHCARE ORGANIZATIONS (The Joint Commission)
    www.The Joint Commission.org

    The Joint Commission On Accreditation of Healthcare Organizations sets quality assurance standards of care for all types of healthcare facilities and organizations. If the hospice agency your loved one is using is "Joint Commission accreditted," then they have to comply with even higher standards than the State and Federal Government require! Healthcare agencies proudly display plaques certifying that they are "The Joint Commission accreditted" and will be eager to avoid any loss of this certification by providing you with appropriate care. If a The Joint Commission accredited healthcare agency/hospice refuses to provide appropriate care, you should make a complaint to The Joint Commission's offices. You can directly make a complaint over the Internet by accessing The Joint Commission's website above and clicking on the "General Public Menu" and then clicking on the "Reporting a Complaint" selection you will see. Also, you can write to The Joint Commission at: 1 Renaissance Boulevard, Oakbrook Terrace, Illinois 60181 Tel. 630-916-5800 Fax. 630-792-5005



Mental Health Related Sites


  • NATIONAL INSTITUTE OF MENTAL HEALTH
    www.nimh.nih.gov/

    The National Institute of Mental Health provides information on all aspects of mental health care and treatment, offers the latest information from NIMH about the symptoms, diagnosis, and treatment of various mental illnesses. Included are brochures and information sheets, reports, press releases, fact sheets, and other educational materials. Information is available in both English and Spanish. If you know anyone suffering from depression, anxiety or other psychological problems, this is a wonderful resource to get help.

  • NATIONAL INSTITUTE OF MENTAL HEALTH: Depression, Awareness, Recognition and Treatment Program (D/ART) www.nimh.nih.gov/dart/index.htm

    This is a National Institute of Mental Health program designed to help reduce the suffering of those with depression. If you're going through depression or know of someone experiencing depression, check out this site!



Nursing Related Sites


  • ALLNURSES.COM
    www.allnurses.com

    An excellent resource listing many nursing websites, information for just about any specialty in nursing.

  • AMERICAN NURSES ASSOCIATION - NURSINGWORLD
    www.nursingworld.org/

    The American Nurses Association is the primary professional nurses association in our country, with links to many other important sites, resources and publications. The ANA works to promote quality professional nursing and to advance the cause of ethical nursing care which provides high quality nursing care to the public.

  • AMERICAN SOCIETY OF PAIN MANAGEMENT NURSES
    www.aspmn.org

    The American Society of Pain Management Nurses is an organization of professional nurses dedicated to promoting and providing optimal care of patients with pain, including the management of its sequelae. This is accomplished through education, standards, advocacy, and research. You can obtain nursing pain management standards of care from ASPMN.
    Tel. 888-342-7766

  • CALIFORNIA NURSES FOR ETHICAL STANDARDS
    www.ethicalnurses.org/

    California Nurses for Ethical Standards is committed to:
    Promote ethical standards of health care provided by nurses and other health care workers in health care facilities, in our communities, in our schools and in service to families through education, research, and training;
    Promote respect for the dignity and value of all human life including that of the preborn, newborn, physically and mentally disabled, aged and dying;
    Be advocates for the protection of rights of conscience;

  • HPNA - HOSPICE & PALLIATIVE NURSES ASSOCIATION
    www.hpna.org/

    The Hospice and Palliative Nurses Association is the leading association for professional nurses working in the hospice industry. This is the place for professional hospice nurses to get up to date information on the latest developments in the field, information on standards of care, practice, publications and links to other important sites.

  • NATIONAL ASSOCIATION OF PRO-LIFE NURSES
    www.nursesforlife.org

    NAPN's mission statement is: "To promote a respect for every life from conception to natural death and to affirm that destroying that life for whatever reason and by whatever means has no place in good nursing practice."

  • NURSE PORTAL
    www.nurseportal.net

    Nurse Portal has several hundred links to sites related to nursing including all state boards of nursing, nursing organizations and specialties, nursing education, nursing blogs and forums as well as many others.

  • NURSINGCENTER.COM
    www.nursingcenter.com

    NursingCenter.com offers a wide variety of resources for nurses in practice, education, research, and nursing students. Features include interactive Continuing Education offerings; Reuters-delivered healthcare newsfeeds; search capability; enormous information resources and services to the nursing community, including many nursing journal articles from numerous leading publications. targeted peer consultation forums, professional career opportunities; databases of nursing organizations; and Continuing Education requirements of State Boards of Nursing.

  • NURSING LEARNING RESOURCE CENTER
    AT THE INDIANA STATE UNIVERSITY SCHOOL OF NURSING

    http://web.indstate.edu/nurs/LRC/lrcpg.htm

    The Nursing Learning Resource Center has a vast amount of information for nurses with links to many other very important sites for nurses.

  • RN MAGAZINE'S WEBSITE
    www.rnweb.com

    An excellent resource on nursing providing information on all aspects of nursing.

  • TOP TEN NURSING SITES
    Top Ten Nursing Sites

    The "Top Ten Nursing Sites" is a directory of hundreds of sites related to nursing care or of interest to nurses. Hospice Patients Alliance is a member of the "Top Ten Nursing Sites" web directory (we're not number 1 - 10 among the nursing sites, though).



Pain Related Sites


  • AMERICAN ACADEMY OF PAIN MEDICINE
    www.painmed.org

    The mission of the American Academy of Pain Medicine is to provide for quality care to patients suffering with pain, through the education and training of all physicians, through research, and through the advancement of the specialty of Pain Medicine. Tel. 847-375-4731

  • ALLIANCE OF STATE PAIN INITIATIVES
    http://aspi.wisc.edu/

    Cancer Pain Initiatives endorse and recommend the approach to cancer pain management first articulated by the World Health Organization and later detailed by the Agency for Health Care Research and Quality Clinical Practice Guideline, Management of Cancer Pain. [See recommended reading list.]

    Working collaboratively with other organizations, such as the American Cancer Society, the Agency for Health Care Policy and Research, the Oncology Nursing Society, the American Pain Society, the National Cancer Institute's Cancer Information Service, and others, Alliance of State Pain Initiatives have participated in numerous outreach and educational programs to improve health care professionals' ability to assess and manage cancer pain. Initiatives have also been active in addressing institutional and regulatory barriers to the treatment of cancer pain.

  • AMERICAN CHRONIC PAIN ASSOCIATION
    www.acpa.org

    Provides peer support and coping skills to anyone with chronic pain.

  • AMERICAN PAIN FOUNDATION
    www.painfoundation.org

    The American Pain Foundation is a nonprofit information resource and patient advocacy organization serving people with pain. Our mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment. We represent exclusively the interests of people who suffer from pain and we fill the need for a grassroots, consumer-driven, patient-focused organization promoting better pain management.

  • AMERICAN PAIN SOCIETY
    www.ampainsoc.org

    "The AMERICAN PAIN SOCIETY(APS) is a multi-disciplinary organization of basic and clinical scientists, practicing clinicians, policy analysts, and others. The mission of the American Pain Society is to advance pain-related research, education, treatment and professional practice. The society was founded in 1978 as a national chapter of the International Association for the Study of Pain (IASP) and now includes more than 3,800 physicians, nurses, psychologists, dentists, basic scientists,pharmacologists, therapists and social workers who research and treat pain and advocate for patients with pain. You can search for a pain treatment facility. They have much vital information about pain management, including treating pain at the end of life, and a large listing of other pain management resources for pain patients. An important resource!

  • CANCER-PAIN.ORG
    www.cancer-pain.org

    Connect to the latest and most accurate information on state-of-the-art management of cancer pain for patients, caregivers and healthcare professionals.

  • CITY OF HOPE PAIN RESOURCE CENTER
    www.cityofhope.org/mayday

    This web site provides a variety of materials including pain assessment tools, patient education materials, quality assurance materials, research instruments and other resources.

  • THE MAYDAY PAIN PROJECT
    www.painandhealth.org

    This web site provides a guide and index of internet information to those in pain. This site is targeted to care givers, family and friends of those suffering from pain.

  • PAIN AND THE LAW
    www.painandthelaw.org/

    This site primarily on the legal issues involving pain management and palliative care

  • PAIN EDUCATION FOR PATIENTS, FAMILIES AND NURSES
    www.nursing.uiowa.edu/sites/pedspain/index.htm

    An excellent resource for information about treating pain such as cancer pain, especially in children, this site is quite helpful, and is still being updated.

  • PAINLINK
    http://www.edc.org/PainLink

    PainLink is a virtual community of health professionals working in institutions that are committed to alleviating pain. It is an initiative of education development center. Membership benefits for healthcare institutions include technical assistance, teaching Cases, access to extensive pain management resources and member discussions.



Public Policy and Access to Political and Government Representative Sites


  • THE CENTER FOR PUBLIC INTEGRITY
    www.publicintegrity.org

    One of the most important books on the media and public policy:
    Off The Record
    What Media Corporations Don't Tell You
    About Their Legislative Agendas

    Washington, DC 2000
    A revealing inside look at how the media not only reports the news and events of our society, but actually influences the government and public opinion intentionally. If you ever wonder why you don't read, see or hear of many important stories affecting our nation, important stories about hospice as well, then get a copy of this book. Some consider the media a "fourth" branch of government, because its ability to influence public policy is so pervasive.

    You can purchase a copy at the Center's website at www.publicintegrity.org Charles Lewis is the Executive Director of The Center and is a former producer of the CBS News program 60 Minutes.

  • FIND YOUR CONGRESSMEN
    www.firstgov.gov

    Email is not effective in communicating with the US Congressional Representatives and Sentators. If you want results, please send them a hard copy letter by US Mail! They get hundreds of thousands of emails and often cannot even look at them.

  • VOTENET.COM
    Votenet.com: The Citizen's Guide to Congress

    (For information on how to contact your State and Federal representatives, the laws being passed or proposed.






Social Worker Related Websites

  • SOCIETY FOR SOCIAL WORK LEADERSHIP
    IN HEALTH CARE

    www.sswlhc.org

    "The Society for Social Work Leadership in Health Care is an association, 1500 members strong, dedicated to promoting the universal availability, accessibility, coordination, and effectiveness of health care that addresses the psychosocial components of health and illness. Vision: To model and promote excellence of social work leadership in health care. Mission Statement: To be the primary professional organization that leads, promotes, develops, and supports social work values, practice, and leadership in health care." This Society is directly associated with the well-known American Hospital Association which advocates for the interests of hospitals nationwide.







If you have questions about hospice, we hope that you will take the time to visit the hundreds of pages at our website and read our Guide to Hospice Care.



Hospice Patients Alliance affirms that all human life is inherently valuable and that the role of hospice nurses, physicians and all other staff is to alleviate suffering and provide comfort for the sick and dying without sanctioning or assisting their suicide. A death with dignity allows for a natural death in its own time, while doing everything possible to assure relief from distressing symptoms. Hospice Patients Alliance works hard to promote quality hospice care throughout the USA. If you would like to support our mission, we hope you wille consider supporting our mission through a donation. Hospice Patients Alliance is a 501(c)(3) charitable nonprofit corporation and your donations are deductible to the full extent allowed by law.







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